JesusSavemefromWD: only 3.5 weeks sertraline enough to destroy me

February 24, 2022

Hey mate sorry to hear about your difficult symptoms. I am recovering from Fluoxetine currently and have experiences extreme headaches, tinnitus, and fatigue. Overall nervous system feels like it is in full reboot.

Something I found helpful was to cut out the rumination of trying to fix the terror and tough feelings. Working on allowing them to be there while I do all the stuff I want to do in life helps we show my brain not to be afraid of it. Instead of trying to get me to do compulsions to fix it the brain can focus on healing.

I hope this helps. Let me know if you have any questions or want more resources on the cutting compulsions and ruminations side of recovery.

February 24, 2022

12 minutes ago, Comfyquilt said:

@JesusSavemefromWD I can hear a tiny bit more hope in your post today. That fills my heart up for you. I am so glad you got some validation from your doctor. That is so important. I think you are healing and your always in my prayers

Thank you …. I need all the prayers in the world…. Yea tiny tiny hope that’s all but things are still severely bad, let’s say 8 compared to 10 (with zero being symptoms free). I can feel I am moving towards to the right direction BUT I don’t know how much longer I can endure this …I hope healing goes faster after some point…. 16 months it’s already too long … You are in my prayers as well. …..

February 24, 2022

14 minutes ago, Moment19 said:

@JesusSavemefromWD

Hey mate sorry to hear about your difficult symptoms. I am recovering from Fluoxetine currently and have experiences extreme headaches, tinnitus, and fatigue. Overall nervous system feels like it is in full reboot.

Something I found helpful was to cut out the rumination of trying to fix the terror and tough feelings. Working on allowing them to be there while I do all the stuff I want to do in life helps we show my brain not to be afraid of it. Instead of trying to get me to do compulsions to fix it the brain can focus on healing.

I hope this helps. Let me know if you have any questions or want more resources on the cutting compulsions and ruminations side of recovery.

Thank you but these techniques don’t work with severe dpdr and Akathisia…. Only time seems to help …. I am glad you are handling your WD , I pray you recover soon and ADs are a thing of your past.

February 24, 2022

There is hope for you. You have seen some improvements, that is huge.. I know it seem small but it is a sigh that you are heading in the right direction......You have gone through the worst and have survived....that show you that you can do this.........Of course the dreaded word "patience" is a huge stumbling block for a lot of us.....

Did you tell your doctor to watch Medicating Normal or read some of the books

Anatomy of a Epidemic or Your Drugs Might be Your Problem. Maybe your talking to her will get her to open up her mind to the horrors these drugs can do.......

You've got this🙂

February 24, 2022

@JesusSavemefromWD

Understood. I hope you all the best in your recovery! The guy I learned from had spoken to his techniques with those that suffer with dpdr and seen great results. If you are ever interested his book was called, 'You Are Not A Rock'. Recovery it possible! I hope that gives you some hope! Keep recovering and getting better mate.

February 24, 2022

5 minutes ago, Greatful said:

There is hope for you. You have seen some improvements, that is huge.. I know it seem small but it is a sigh that you are heading in the right direction......You have gone through the worst and have survived....that show you that you can do this.........Of course the dreaded word "patience" is a huge stumbling block for a lot of us.....

Did you tell your doctor to watch Medicating Normal or read some of the books

Anatomy of a Epidemic or Your Drugs Might be Your Problem. Maybe your talking to her will get her to open up her mind to the horrors these drugs can do.......

You've got this🙂

I couldn’t talk a lot, I told her I would call her if i recover and explain in more details . I am not sure I ve got this …. The improvements are there but so small that I don’t know how much more I can take before giving into RI. Thank you for your support….. I keep you in my thoughts and prayers.

February 25, 2022

1 hour ago, Moment19 said:

@JesusSavemefromWD

Understood. I hope you all the best in your recovery! The guy I learned from had spoken to his techniques with those that suffer with dpdr and seen great results. If you are ever interested his book was called, 'You Are Not A Rock'. Recovery it possible! I hope that gives you some hope! Keep recovering and getting better mate.

Thank you

February 28, 2022

Hey there @JesusSavemefromWD just stopping by to send you good thoughts in your recovery. Please remember you are not alone in your journey and I pray you'll see improvements soon, even small ones. Have a great day! 🙂

February 28, 2022

2 hours ago, john856 said:

Hey there @JesusSavemefromWD just stopping by to send you good thoughts in your recovery. Please remember you are not alone in your journey and I pray you'll see improvements soon, even small ones. Have a great day! 🙂

Thank you…. Things are still horrific, I have been suffering for over 16 months now don’t have much strength left, I am considering going back on a low dose of the poison that destroyed me and wean off much slower…. I ll update my thread if I do…. I see you are doing better as time goes by, thank God

March 2, 2022

On 2/28/2022 at 7:36 PM, JesusSavemefromWD said:

Thank you…. Things are still horrific, I have been suffering for over 16 months now don’t have much strength left, I am considering going back on a low dose of the poison that destroyed me and wean off much slower….

JesusSaveme,

I am really sorry to hear that things are still so bad for you...I don't really have anything to say that can help...except to say that acceptance is the only thing. At least you can sleep.. That is one positive at least. Sleep is healing in itself.

Oaktree🌸

March 2, 2022

7 hours ago, Oaktree1 said:

JesusSaveme,

I am really sorry to hear that things are still so bad for you...I don't really have anything to say that can help...except to say that acceptance is the only thing. At least you can sleep.. That is one positive at least. Sleep is healing in itself.

Oaktree🌸

Thank you

I can’t believe i am so bad that after 16 months of pure mental torture I am considering restarting this poison. But I really don’t think I can last much longer like this. I try to focus on my head buzzing which seems to be fainting more and more day after day and tell myself “ see you are healing, just give it a bit longer” but the dpdr , the terror, the Akathisia are just relentless day after day. Yes I am sleeping good most of the time and it’s a break from hell but how much longer can I just count down the hours of a day just looking forward to sleep to get relief? I don’t know….. how can that be from such short exposure I keep wondering….
How are you doing?

March 3, 2022

Hi @JesusSavemefromWD

I can understand that you are feeling near the end of your rope..I don't know what else to say only that it's awful for you and the only thing that you can do is accept it but you may feel that have had enough and wish to reinstate. Only a moderator can advise you on that.

I slipped back again last week due to the war in Ukraine, my cats illness and my personal circumstances which are dire. I try to manage by getting through my tasks each day, talking out loud to myself and distracting myself by TV and housework. I feel like I am keeling through the days - hours will go by and I won't know how it got from 1 to 5pm.

I hope you get some relief soon

Oaktree

March 5, 2022

Will this torture ever be over? 🥺

March 5, 2022

Thinking of you @JesusSavemefromWDyou don’t deserve this, none of us do. But everything I’ve been reading says that everyone heals eventually , you will too ⛲️🌳

March 5, 2022

One day you will tell your story of how you’ve overcome what you’re going through now, and it will become part of someone else’s survival guide.

I can’t even begin to contemplate the suffering you experience each day. All I can do is tell you to keep batting each day, and never give up. When you beat this you will be motivation for someone else to keep going.

March 5, 2022

6 hours ago, Erimus said:

One day you will tell your story of how you’ve overcome what you’re going through now, and it will become part of someone else’s survival guide.

I can’t even begin to contemplate the suffering you experience each day. All I can do is tell you to keep batting each day, and never give up. When you beat this you will be motivation for someone else to keep going.

🙏….. I just hope it’s true that we eventually all heal ….. doesn’t feel like much healing happening for me…..

March 5, 2022

7 hours ago, eileen1111 said:

Thinking of you @JesusSavemefromWDyou don’t deserve this, none of us do. But everything I’ve been reading says that everyone heals eventually , you will too ⛲️🌳

Thank you, no one deserves this, it’s inhuman torture…. I hope God has mercy on us but almost 17 months of suffering I am about to loose hope and faith …. I am sorry for my negative posts but this suffering is just horrible.

My head buzzing keeps fainting away I know it’s a good sign of healing but doesn’t give me any relief from dpdr , Akathisia or dread and despair

March 7, 2022

Hi @JesusSavemefromWD Do not give up. Remember that there is always a reason to keep fighting. If you managed to get this far, you can make it through.

March 7, 2022

10 hours ago, Riccardo said:

Hi @JesusSavemefromWD Do not give up. Remember that there is always a reason to keep fighting. If you managed to get this far, you can make it through.

🙏….. I am trying to survive this. I see you reinstated half of your cymbalta dose. Are you feeling any better?

March 8, 2022

Please give it more time . It took me 3 years to see a good amount of improvement with smashing giant waves. Remember to be careful with you CNS . I was setback SEVERELY last year and again this year . Thats why I think it's a very bad idea for you to RI.

March 8, 2022

47 minutes ago, Alice1 said:

Please give it more time . It took me 3 years to see a good amount of improvement with smashing giant waves. Remember to be careful with you CNS . I was setback SEVERELY last year and again this year . Thats why I think it's a very bad idea for you to RI.

I have read your thread, I am so sorry for what you are going through. I know the best thing to do is to stay away from these poisons but I am not sure I can keep taking this suffering for much longer. I only took this poison for 3.5 weeks … it’s almost 17 months with minor improvements. In my case the discontinuation brought hell …, How are you doing now? After your second setback?

March 8, 2022

Hi @JesusSavemefromWD Thanks, I do feel better, not fully ok of course, I am trying to give it some time to see if my body can adapt to 1/2 dose. I'm still dealing with WD symptoms and probably I will have to for quite a long time I'm afraid, but I promised myself to be strong.

How are you today? I saw that your sleep resumed, do you manage to get enough rest? Do you still feel arm / shoulder pain?

Please do not give up ok? I know it sounds maybe almost meaningless, but try hard to focus on the small improvements, even if you see them for one day, even for some part of a day, it's a sign your body is healing and these do get more frequent, it's only a matter of patience and strength.

March 8, 2022

42 minutes ago, Riccardo said:

Hi @JesusSavemefromWD Thanks, I do feel better, not fully ok of course, I am trying to give it some time to see if my body can adapt to 1/2 dose. I'm still dealing with WD symptoms and probably I will have to for quite a long time I'm afraid, but I promised myself to be strong.

How are you today? I saw that your sleep resumed, do you manage to get enough rest? Do you still feel arm / shoulder pain?

Please do not give up ok? I know it sounds maybe almost meaningless, but try hard to focus on the small improvements, even if you see them for one day, even for some part of a day, it's a sign your body is healing and these do get more frequent, it's only a matter of patience and strength.

Glad to hear you are doing better. My sleep was only interrupted between months 10-12. Shoulder pain is still there but minor. Among all my symptoms it’s the severe dpdr and Akathisia that make my life a living hell. Only those who have experienced it can understand…. Yes it’s a great thing to sleep good but waking up every day in dpdr and Akathisia it’s just …. Hell… approaching 17 months …. I will not be surprised if it takes me 3.5 years to heal for just 3.5 weeks of Zoloft….. I am trying my best to survive day by day hoping to recover so I can fight these drugs with every way I can

March 8, 2022

@JesusSavemefromWD I am so sorry you are going through all these awful symptoms, really. I experienced Akathisia in the past, mostly back when I was starting with medications, it's just horrible. Never had dpdr luckily, but sounds even worse... 😞

We need to fight this day by day, I think it's the only way. Of course if we look for the end of the bad feelings, we can get discouraged, but I take it as a long run, one km at a time...even sometimes with some steps back, it can happen. I mean you reached 17 months, it's just incredible and inspiring to me to fight. You must have an unreal mental strength. If you reached this point, I am sure you can make it through.

May I ask you about the shoulder pain? I also have arm and shoulder pain (only left side, sometimes even the foot). I believe it is due to some WD symptoms related to blood flow / circulation / heart, since it impacts my left side only, never the right. Have you experienced anything like this? Do you think it can be dangerous?

March 8, 2022

8 minutes ago, Riccardo said:

@JesusSavemefromWD I am so sorry you are going through all these awful symptoms, really. I experienced Akathisia in the past, mostly back when I was starting with medications, it's just horrible. Never had dpdr luckily, but sounds even worse... 😞

We need to fight this day by day, I think it's the only way. Of course if we look for the end of the bad feelings, we can get discouraged, but I take it as a long run, one km at a time...even sometimes with some steps back, it can happen. I mean you reached 17 months, it's just incredible and inspiring to me to fight. You must have an unreal mental strength. If you reached this point, I am sure you can make it through.

May I ask you about the shoulder pain? I also have arm and shoulder pain (only left side, sometimes even the foot). I believe it is due to some WD symptoms related to blood flow / circulation / heart, since it impacts my left side only, never the right. Have you experienced anything like this? Do you think it can be dangerous?

I don’t have an unreal mental strength…. I just have to very young boys who need me and I have to survive this for them.
The shoulder-arm pain appeared about 8 months into the WD hell and started getting better recently, in fact I don’t really feel the pain now but I cannot lift my arm all the way up, it’s like it’s locked but doesn’t hurt or bother me a lot. I cannot reach smg high using this arm but that’s all. It’s my right side. Mine feels more like a nerve pinched like pain. I am sure it is not dangerous . Does ur pain feel like pinch or like pressure or like dull pain?
Bless God you don’t have dpdr, for me it’s even worst hell than Akathisia cause in my case Akathisia lasts few hours per day and then I get a break…. But I never get a break from dpdr and the fear that goes along with it.. it’s what’s holding me bedridden/housebound ….

March 8, 2022

@JesusSavemefromWD From my very inexperienced point of view, your pain seems to be something related to muscle contraction / neuropatic pain. Painful but not dangerous. Clearly dpdr and Akithisia are your monsters, I can only wish you to improve, from the bottom of my heart.

My pain is more like pressure. Sometimes tingling, clearly due to blood flow / circulation. Plus I feel distinctly my heart beat after meals. Sometimes also pinching in my left arm / armpit, but rarely after I reinstated the medication.

During the first WD symptoms wave (before reinstating) the pain and pressure were also in my chest, which literally scared the hell out of me. Now I am just worried that all of this could be dangerous for my heart. I think that very soon I will go to the cardiologist to have a full check, but somehow I believe that the heart is not the problem, but rather a consequence, something impacted by the withdrawal. May I ask what you think? Have you ever heard / read about anything like this?

I am not experiencing neither depression nor panic attacks (which were the reasons why I started taking cymbalta many years ago and even earlier prozac), so I believe that there is no point for me to keep ADs. I only have this pain, which is not terrible now, but until I don't know if can be life threatening I won't feel 100% safe, of course. If it is not, I am willing to coexist with it, as long as I can get rid of cymbalta and be med-free.

March 9, 2022

23 hours ago, JesusSavemefromWD said:

it’s almost 17 months with minor improvements

This should be your anchor.

23 hours ago, JesusSavemefromWD said:

How are you doing now? After your second setback?

I wish I didn't get back on something. Hard to find the right pills to taper so I might have to do this the hard way again . Still functioning but it's terribly hard .

March 9, 2022

3 hours ago, Alice1 said:

This should be your anchor.

I wish I didn't get back on something. Hard to find the right pills to taper so I might have to do this the hard way again . Still functioning but it's terribly hard .

I am trying to focus on the small improvements but you know how hard it is when you are being literally tortured every day with Akathisia and dpdr. Sometimes I say F it! I ll reinstate in the hopes of having a life agsin and then I say “I prefer to die than taking this poison again”..,, but I don’t know which attitude is correct… My kids and husband suffer with me ….
Did you have bad side effects/symptoms while on cymbalta or hell started after you quitted? I pray you feel better soon, you have been suffering for long time ….

March 9, 2022

17 hours ago, Riccardo said:

@JesusSavemefromWD From my very inexperienced point of view, your pain seems to be something related to muscle contraction / neuropatic pain. Painful but not dangerous. Clearly dpdr and Akithisia are your monsters, I can only wish you to improve, from the bottom of my heart.

My pain is more like pressure. Sometimes tingling, clearly due to blood flow / circulation. Plus I feel distinctly my heart beat after meals. Sometimes also pinching in my left arm / armpit, but rarely after I reinstated the medication.

During the first WD symptoms wave (before reinstating) the pain and pressure were also in my chest, which literally scared the hell out of me. Now I am just worried that all of this could be dangerous for my heart. I think that very soon I will go to the cardiologist to have a full check, but somehow I believe that the heart is not the problem, but rather a consequence, something impacted by the withdrawal. May I ask what you think? Have you ever heard / read about anything like this?

I am not experiencing neither depression nor panic attacks (which were the reasons why I started taking cymbalta many years ago and even earlier prozac), so I believe that there is no point for me to keep ADs. I only have this pain, which is not terrible now, but until I don't know if can be life threatening I won't feel 100% safe, of course. If it is not, I am willing to coexist with it, as long as I can get rid of cymbalta and be med-free.

Your arm pain sounds of different nature than mine but I think it’s also related to AD use. The best way to put your mind at ease is to check your heart and prove to yourself you have nothing to worry about. I hope you do a slow and painless withdrawal from cymbalta.

March 9, 2022

12 hours ago, JesusSavemefromWD said:

Did you have bad side effects/symptoms while on cymbalta or hell started after you quitted?

I was on Lexapro and yes to both .

March 10, 2022

We talked about fast metabolism once. You told me that a college of yours mentioned that most averse effect from psych meds are in people with fast metabolism right?

Was he/she talking about cytochrome p450?

How did they measure it? Dna test?

I tried to ask you on pm but you cannot reseave messages...

Edited March 10, 2022 by kostakonkordia

March 10, 2022

59 minutes ago, kostakonkordia said:

We talked about fast metabolism once. You told me that a college of yours mentioned that most averse effect from psych meds are in people with fast metabolism right?

Was he/she talking about cytochrome p450?

How did they measure it? Dna test?

I tried to ask you on pm but you cannot reseave messages...

ultra rapid metabolizers as well as slow metabolizers (two extreme ends) are in high danger for adverse reactions. The vast of doctors only know that slow metabolizers are at risk but so are ultra rapid and rapid. Yes this involves the cytochromes involved in breaking down these drugs and it can be found only by a genetic test. The rapid metabolism is only one reason of people getting adverse reactions, there are many others as well, which can also be revealed by a genetic test. In my case it seemed there were three genetic polymorphisms that contributed to this severe suffering from just a low short term use of Zoloft. It would be to complicated to explain here. But there are four points that need to be clarified here

1. Genetics “don’t lie” I mean an individual either has or doesn’t have the genetic polymorphism for rapid metabolizing. However the interpretation of genetics is another story, and can be really misleading, for example most doctor and some genetic companies believe that a rapid metabolizer just needs higher doses of the drug, while few doctors and genetic companies who really know their sh it, believe that rapid metabolizers are prone to adverse reactions. I am a living prof of that. Doesn’t mean all rapid metabolizers will have issues with the drug that they metabolize fast but it is very likely they will. So genetics don’t lie , the interpretation of genetics can be false and dangerous

2. there might be more than one genetic polymorphisms contributing to adverse reactions, in my case as I said there where three

3. We all have genetic polymorphisms, that’s what make people different, these are NORMAL variations in our DNA that make us unique. They are not mutations that cause a disease. I am noting this cause I am sick and tired of some stupid doctors telling me “wow you had an underlying issue that caused this adverse reaction”. No, if I had never taken this poison these polymorphisms would have never cause me any problems (me and other rapid metabolizers).

4. Even people who have genetic reports not indicating any polymorphisms that might make them prone to adverse reactions, might still suffer from these drugs for other unidentified reasons because we simply don’t know a lot on how these drugs affect the brain . The enzymes metabolizing these drugs are outside the brain , and only give us indications of how these drugs are metabolized by our body, but how the drug will affect after reaching the brain is another unpredictable story.
Bottom line these drugs are Russian roulette for your brain and should be avoided unless there are serious mental issues.
i have had few members reaching out to me asking for this rapid metabolizer issue, maybe the administrators here would consider somehow highlighting this post

March 10, 2022

1 hour ago, kostakonkordia said:

We talked about fast metabolism once. You told me that a college of yours mentioned that most averse effect from psych meds are in people with fast metabolism right?

Was he/she talking about cytochrome p450?

How did they measure it? Dna test?

I tried to ask you on pm but you cannot reseave messages...

I was able to message you

March 10, 2022

That was a very interesting read on rapid metabolizers. Gosh our brains and bodies are so complex. I really do agree that these drugs are like playing Russian roulette. It's insane how these drugs are given out so easily without any effective way to know how they'll react in most people first. There's so much we don't know and so much research to be done. It's simply mind boggling how these drugs are so easily prescribed.

How would I know if I'm possibly a rapid metabolizer? Is this something that could only be known by doing a lab test? I appreciate this type of info, thank you!

March 10, 2022

40 minutes ago, john856 said:

That was a very interesting read on rapid metabolizers. Gosh our brains and bodies are so complex. I really do agree that these drugs are like playing Russian roulette. It's insane how these drugs are given out so easily without any effective way to know how they'll react in most people first. There's so much we don't know and so much research to be done. It's simply mind boggling how these drugs are so easily prescribed.

How would I know if I'm possibly a rapid metabolizer? Is this something that could only be known by doing a lab test? I appreciate this type of info, thank you!

You are welcome. Hope you are doing better day after day. I am still suffering non stop …. Unfortunately once your brain is messed up with these poisons, no genetic report can predict how long will take for your brain to recover from this exogenous attack. Anyone thinking of starting ADs please try other routes before ….. don’t play Russian Roulette with your brain.

March 10, 2022

41 minutes ago, john856 said:

That was a very interesting read on rapid metabolizers. Gosh our brains and bodies are so complex. I really do agree that these drugs are like playing Russian roulette. It's insane how these drugs are given out so easily without any effective way to know how they'll react in most people first. There's so much we don't know and so much research to be done. It's simply mind boggling how these drugs are so easily prescribed.

How would I know if I'm possibly a rapid metabolizer? Is this something that could only be known by doing a lab test? I appreciate this type of info, thank you!

Yes, the only way is a genetic test, there are many companies that offer that, you don’t have to go to them, they send a tool to you to collect your saliva and send back to them for DNA analysis. They tend to be expensive unless you are a lucky one with an insurance that covers it.
It will not help you with withdrawal, I took the test after I was messed up by Zoloft for two reasons

1. I am so bad that every day o consider RI so if I do go ahead with it at least I ll choose a drug that is compatible with my genetics . Even that will not warranty safety, it is just a better bet that’s all

2. As a scientist, i wanted to figure out what the hell happened to me and use these info in a scientific publication that i plan on putting together if I ever recover.

If you are not planning on RI or taking any other drugs of this kind and your insurance doesn’t cover this test, it ll not help you at this point. If your insurance does cover it it worths doing cause it provides other info as well that you might find helpful for your diet or life style.

JesusSavemefromWD: only 3.5 weeks sertraline enough to destroy me

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