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Muddles

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I didn't get to tell half of my symptoms either - as soon as I mentioned headache that was it! I was given an hour and most of that was spent with him talking about migraines! I wished I had took some articles for him to read. My severe alzihmers symptoms are from a migraine???? What a joke.

2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription.

Severe adverse reaction

Mirtazapine prescribed - adverse reaction but told to stay on.

Poop out - December 2013

15mg

Currently on 13.5mg,

April 12mg

May 10th - 11mg

June 10th - 10mg

July 8th - 9mg

September - 0mg

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I went to a neuro and did an MRI, EEG and bloodwork and all was fine. He said I had anxiety.  Ummmm no duh I have anxiety, I am out of my friggin' mind.  A waste of time and money.

Dec 2014 I tried Zoloft 25mg for one week (adverse reaction - extreme anxiety and felt like I was on an amphetamine). Dr. said to quit cold turkey, so I not only quit Zoloft but also 2 weeks of Xanax .25mg -- extreme dizziness, hyperarousal and anxiety began! On Jan. 29, 2015 my psychiatrist put me on new stuff and this is how my next 2 months and 7 days looked like (I was having the same bad reactions to all of these):Effexor XR 37.5mg (3 days) - throwing up, heart palpations, night tremors/convulsions or something where whole body shakes for a second, Prozac 10mg (15 days), Prozac 20mg (7 days) - internal restlessness, electric current through body/brain (not zaps), agitation, intense fear and could no longer nap at this point (still can't today because of this), Lexapro 5mg (4 days) - same as Prozac, a horror show...extreme internal agitation, Lexapro 7.5mg (2 days), Lexapro 10mg (16 days), Zoloft 12.5mg (3 days)...she said try it again since my blood relative does well on it, Zoloft 25mg (7 days) - same as before and getting worse!! Zoloft 50mg (6 days), Zoloft 25mg (4 days and then came off cold turkey on April 8, 2015). I used Xanax .25mg about 7 times per month through all of this until June 30, 2015 (my last benzo dose). Extreme anxiety, nervous system traumatized, mental akathisia, anger triggered by nothing but the brain totally going off on its own, feeling of a pressurized electric current going through me like my brain and body are trying to explode, stress reaction x10000 to everything, waking in terror lasting all day, fear, very sensitive, brain can't keep up, don't know what to do with myself, feeling like everything is going too fast and I can't keep up, helium head, deep depression like something is ripping out my soul, out of my mind, can hardly drive or be alone, cognitive issues, simple tasks are so complex and straining, feel disturbed because the brain can't process anything right even though your brain tries so hard and it makes you go mad, episodes of deep anguish with a sick toxic poison feeling (like you have some unknown virus).

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Sorry you went through that Muddles. Doctors really are useless for people in our predicament. 

I suffer from depression, anxiety, pure-o ocd, and panic attacks since 2004. Been on multiple different psychiatric drugs since 2006. Never had a significant WD problem before, only brain zaps for a month and then I'd be fine...............Been on Cipralex (escitalopram) 15 mg and Fluanxol (flupentixol) 1 mg since Sep 2014. Stopped taking the Cipralex after a fast 20-day taper.Took the last 5 mg Cipralex on Feb 5th, 2015. Then took Seroxat (paroxetine) 10 mg for a week, and stopped it too. Severe WD started suddenly on Feb 16th. RI 5 mg Cipralex on Feb 18th, 2015. RI worked and was relatively stable for a while................April 7 - decreased Fluanxol from 1 mg to 0.5 mg and took it at this dose for a week. - BIG MISTAKE; April 13 - WD starts creeping in; April 14 - RI full dose of Fluanxol 1 mg => severe muscle twitching and jerking when trying to relax and fall asleep, overwhelming sense of doom, dread, terror, and horror, insomnia, hoping to stabilize.
Tried doing a 10% cut off Fluanxol in the end of May for a few days, but quickly updosed to full dose because the twitching returned.
Experiencing waves and windows in the following months.
Unsuccessful brief taper attempt of Fluanxol by 5% on November 1st. Symptoms hit the next day. Too scared to continue tapering, reinstate full dose.
Severe crash in November after stupidly trying a barbiturate on November 9th. Grave mistake. Sense of unshakable inescapable internal torture, like my soul is in hell being tortured, terror/horror/dread/doom (probably akathisia?) that gets especially bad when trying to relax and fall asleep, muscles twitch, jerk and move on their own, shaking, insomnia, can't eat, confusion, disorientation, brain not working normally. Never felt so bad in my entire life. Never experiment with other meds while in WD! Praying to God I stabilize and get back to my baseline.
December - things getting even worse.

January - unbearable suffering

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All my neuro trips years ago ended with it doesn't look like MS. U r fine. That was before withdrawal. Won't even waste my time going now that I am drug damaged from the meds they put me on for my apparent fibro cause they couldn't find anything wrong. I hate doctors . They are only useful if you are missing a limb or bleeding everywhere.

2002-put on amitryptiline for fibromyalgia. 10mg.2004-stopped abruptly. Didn't think it helped.2006 approx.-put on Paxil for mild anxiety 20 mg.2007 upped to 40 mg. not sure why.2011- tapered from 40 to 10. went nuts and went back to 20mg2014- tapered from 20mg to 0 from April to The end of June.current meds- Metformin(type 2 diabetic) and low dose aspirin.Take multi vitamin and vit b12, vit. D and magnesium. 5 months off Paxil. Still suffering.recently added 1.2mg of Paxil to alleviate withdrawals.(Nov 30)Dropped to .9mg because having symptoms from reinstatement.(dec 23)<p>taper to .76mg-.8mg (Feb 3) approx. weight .010 to about .008-.009 on scale.
.6mg (march 19th.) .5mg(April 19th)
.4mg(April 27th)
.2 (June 27th)

0mg.  done taper at beginning of August.

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Oh my... But does he prescribe these "very safe" drugs to HIS children?!

 

Looks like you're caught between a rock and a hard place! Might well be a way to get help, though!!

Zoloft 100 mg. daily for Chronic Fatigue Syndrome since Oct. 1994 / Synthroid 88 mcg. daily / Supplements: Neptune Krill Oil-1,000 mg. twice daily/Astaxanthin 10 mg. twice daily/Ubiquinol 100 mg. twice daily (These 3 have allowed me to discontinue (approved by doctor) bp meds I was on. Calcium Citrate 500 mg. daily/Vitamin D3 2,400 iu daily/K2 (MK7) 100 mcg daily (osteopenia and fam. hist. of severe osteoporosis). Stress B Complex (1/2 dose)/Quercetin (for allergies/asthma)/Magnesium (400 mg. oral glycinate and about 50 mg. magnesium chloride spray oil a day, divided throughout day).

Tapered Zoloft about 6 wks. Totally off since the end of July (25-29, 2014). 3 wks. vertigo at end of taper, then 3-4 wks. OK, followed by withdrawal symptoms increasing in severity (nausea, gastric disturbances, loss of appetite, insomnia, restlessness, jitters, anxiety, agitation--jumping out of my skin--possible akathisia?) Seem to have paradoxical reactions to everything new, even Vitamin C. Severity of akathisia comes and goes, but is constant to some degree. Hard to leave house, and cannot be home alone. (Retired)

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Muddles please get tested for heavy metal toxicity I'm begging you. I will bet my house that's why you have (in addition to WD of course)

Diagnosed: Pure O Ocd, Severe Anxiety Disorder NOS, PMDD

 

November 2009 - May 2013- CIPRALEX 20mg

C/T off 20mg Cipralex

Went into dark depression (never experienced before med)

September 2013 - March 2014- PROZAC 20mg

Weaned down to 10mg and held

October 1st 2014 C/T off 10mg Prozac

Protracted withdrawal - 8 months of the most horrific suffering imaginable

June 1st 2015 - ZOLOFT 25mg

June 26th 2015 - Dose increase to 50mg of Zoloft (taken at night after dinner). Slowly improving but still have severe OCD/ruminating, intense DP/DR, and brain fog. Just trying to stabilize at this point.

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What are the symptoms of heavy metal toxicity?

Dec 2014 I tried Zoloft 25mg for one week (adverse reaction - extreme anxiety and felt like I was on an amphetamine). Dr. said to quit cold turkey, so I not only quit Zoloft but also 2 weeks of Xanax .25mg -- extreme dizziness, hyperarousal and anxiety began! On Jan. 29, 2015 my psychiatrist put me on new stuff and this is how my next 2 months and 7 days looked like (I was having the same bad reactions to all of these):Effexor XR 37.5mg (3 days) - throwing up, heart palpations, night tremors/convulsions or something where whole body shakes for a second, Prozac 10mg (15 days), Prozac 20mg (7 days) - internal restlessness, electric current through body/brain (not zaps), agitation, intense fear and could no longer nap at this point (still can't today because of this), Lexapro 5mg (4 days) - same as Prozac, a horror show...extreme internal agitation, Lexapro 7.5mg (2 days), Lexapro 10mg (16 days), Zoloft 12.5mg (3 days)...she said try it again since my blood relative does well on it, Zoloft 25mg (7 days) - same as before and getting worse!! Zoloft 50mg (6 days), Zoloft 25mg (4 days and then came off cold turkey on April 8, 2015). I used Xanax .25mg about 7 times per month through all of this until June 30, 2015 (my last benzo dose). Extreme anxiety, nervous system traumatized, mental akathisia, anger triggered by nothing but the brain totally going off on its own, feeling of a pressurized electric current going through me like my brain and body are trying to explode, stress reaction x10000 to everything, waking in terror lasting all day, fear, very sensitive, brain can't keep up, don't know what to do with myself, feeling like everything is going too fast and I can't keep up, helium head, deep depression like something is ripping out my soul, out of my mind, can hardly drive or be alone, cognitive issues, simple tasks are so complex and straining, feel disturbed because the brain can't process anything right even though your brain tries so hard and it makes you go mad, episodes of deep anguish with a sick toxic poison feeling (like you have some unknown virus).

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I'm so sorry you had such an awful experience! It's a disgrace that doctors just refuse to listen to what the patient has to say. The same thing happened to me when I went to the neurologist. He blamed everything on migraines. 

 

To be honest, I think you'll never get a doctor to admit that the psych drugs caused this. I think it just doesn't enter into the brains of doctors that people react differently to drugs. If they see one person recover from withdrawal after two weeks, that's it. They will not believe anyone who takes longer. 

 

Also, they probably don't have a diagnostic code for psych drug damage. I think it will take another 10 years until our condition is acknowledged. I'm so upset about this! I feel we need to do something but I don't know what....except for reporting our side effects to FDA, Yellow Card Scheme etc

Feb 2015 Took venlafaxine for 5 days only... experienced withdrawal that made me completely non-functional

Mar 2015 took under 1mg of Sertraline for 10 days in an attempt to combat Venlafaxine withdrawal. Got adverse reactions. 

After stopping Sertraline, withdrawal got much worse. New, horrific symptoms. 

June 2015 Still non-functional but slowly getting better. Still brain zaps, migraines, sweating, heart racing, depression, crying spells

September 2015: 24/7 brain zaps, twitches in the face, no concentration, bad memory, language skills deteriorating. 

 

Profile feed: http://goo.gl/3g2GRn

 

Sign this petition for a blackbox warning on Prozac in Ireland:

https://www.change.org/p/leo-varadakar-hpra-the-lack-of-a-blackbox-warning-on-prozac-in-ireland-and-its-use-by-the-hse-in-under-18-s?recruiter=63289046&utm_source=share_petition&utm_medium=facebook&utm_campaign=share_for_starters_page&utm_term=des-lg-no_src-no_msg

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Make tons of ******* noise EVERYWHERE is what we need to do. But people are ashamed of what happened to them and don't want to do that. I'm already making noise on my facebook wall and will continue to do so in the future. I will never shut up about this no matter what it costs me. 

I suffer from depression, anxiety, pure-o ocd, and panic attacks since 2004. Been on multiple different psychiatric drugs since 2006. Never had a significant WD problem before, only brain zaps for a month and then I'd be fine...............Been on Cipralex (escitalopram) 15 mg and Fluanxol (flupentixol) 1 mg since Sep 2014. Stopped taking the Cipralex after a fast 20-day taper.Took the last 5 mg Cipralex on Feb 5th, 2015. Then took Seroxat (paroxetine) 10 mg for a week, and stopped it too. Severe WD started suddenly on Feb 16th. RI 5 mg Cipralex on Feb 18th, 2015. RI worked and was relatively stable for a while................April 7 - decreased Fluanxol from 1 mg to 0.5 mg and took it at this dose for a week. - BIG MISTAKE; April 13 - WD starts creeping in; April 14 - RI full dose of Fluanxol 1 mg => severe muscle twitching and jerking when trying to relax and fall asleep, overwhelming sense of doom, dread, terror, and horror, insomnia, hoping to stabilize.
Tried doing a 10% cut off Fluanxol in the end of May for a few days, but quickly updosed to full dose because the twitching returned.
Experiencing waves and windows in the following months.
Unsuccessful brief taper attempt of Fluanxol by 5% on November 1st. Symptoms hit the next day. Too scared to continue tapering, reinstate full dose.
Severe crash in November after stupidly trying a barbiturate on November 9th. Grave mistake. Sense of unshakable inescapable internal torture, like my soul is in hell being tortured, terror/horror/dread/doom (probably akathisia?) that gets especially bad when trying to relax and fall asleep, muscles twitch, jerk and move on their own, shaking, insomnia, can't eat, confusion, disorientation, brain not working normally. Never felt so bad in my entire life. Never experiment with other meds while in WD! Praying to God I stabilize and get back to my baseline.
December - things getting even worse.

January - unbearable suffering

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Hi Muddles!

Sorry u don't know me; quite new here. Just been reading your thread yesterday so was checking to see how yr appointment was; sorry he did not listen! Just looked up gabapentin on wiki- sure there must be better sources. But there it says it is pretty ineffective for the conditions he thinks you have and far from harmless; it has a suicide warning among other things! He would be drug phobic if he had gone through what you have! Difficult decision making! Thinking of you!

<p>Became depressed and anxious after persistent bulliying at school. started with fluoxetine 20 years ago(1995), when I was 21, was changed to seroxat(citalopram) 20 mg after a couple of years or so because of side effects. This enabled me to get through university and beyond but whenever I tried to stop, usually tapering, I never got past one year off meds. This time I stopped around Christmas 2014. I did taper but very fast I guess, from 40 to 30 to 20, then 10, then 5(I think), over a few months. I cannot remember precisely. I stopped while moving from the Netherland to Holland so am no longer under any medical supervision. However I am trying a reinstatement; I tried 1mg from the 29th of June for ten days, 2 mg from the 11 th July 2015, 1.8mg from 10th Aug, 1.6mg from 16th Sept.

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I'm so sorry Muddles. Thinking of you. X

The only way out is through.

 

Aug 2013 - Augmentin leading to akathisia

Sept-Nov 2013 - Citalopram 20mg, severe reaction, off at 5mg. Valium 4mg, prn

Oct 2013 - 5 zopiclone tablets, 7.5mg

End Nov 2013-end Feb 2014, Seroquel, top dose 150mg, off at 25mg

End Nov 2013-early march 2014, Zoloft 100mg top dose, off at 25mg

End Dec-2013-early April 2014, lorazepam 1mg prn

April 3rd 2014 zoloft 5mg for a few days. 18/4/14 - zoloft, 1mg. Came off at 0.35 mg,14th June 2014

29 June 2014 - 1mg lorazepam, last ever

29 June 2014 - med free

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Muddles please get tested for heavy metal toxicity I'm begging you. I will bet my house that's why you have (in addition to WD of course)

thank you - I have ordered a test so we will see. Half of my filling has come away so I'm thinking there may be some mecury swimming around somewhere. Hope you're doing ok now.

2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription.

Severe adverse reaction

Mirtazapine prescribed - adverse reaction but told to stay on.

Poop out - December 2013

15mg

Currently on 13.5mg,

April 12mg

May 10th - 11mg

June 10th - 10mg

July 8th - 9mg

September - 0mg

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Time is limited on here. Sorry I can't respond to everyone but thanks for dropping by. Being on the computer makes me so ill so limiting time. So sick and just want some relief. Had to watch my children go out to a party without me, haven't been able to do anything in the hols so far. Breaks me.

 

had a huge argument with the husband yesterday who basically told me I have to now accept this condition. How am I supposed to accept this?

2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription.

Severe adverse reaction

Mirtazapine prescribed - adverse reaction but told to stay on.

Poop out - December 2013

15mg

Currently on 13.5mg,

April 12mg

May 10th - 11mg

June 10th - 10mg

July 8th - 9mg

September - 0mg

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Muddles, you do NOT have to accept this condition! It WILL get better!!

 

XOXO

Zoloft 100 mg. daily for Chronic Fatigue Syndrome since Oct. 1994 / Synthroid 88 mcg. daily / Supplements: Neptune Krill Oil-1,000 mg. twice daily/Astaxanthin 10 mg. twice daily/Ubiquinol 100 mg. twice daily (These 3 have allowed me to discontinue (approved by doctor) bp meds I was on. Calcium Citrate 500 mg. daily/Vitamin D3 2,400 iu daily/K2 (MK7) 100 mcg daily (osteopenia and fam. hist. of severe osteoporosis). Stress B Complex (1/2 dose)/Quercetin (for allergies/asthma)/Magnesium (400 mg. oral glycinate and about 50 mg. magnesium chloride spray oil a day, divided throughout day).

Tapered Zoloft about 6 wks. Totally off since the end of July (25-29, 2014). 3 wks. vertigo at end of taper, then 3-4 wks. OK, followed by withdrawal symptoms increasing in severity (nausea, gastric disturbances, loss of appetite, insomnia, restlessness, jitters, anxiety, agitation--jumping out of my skin--possible akathisia?) Seem to have paradoxical reactions to everything new, even Vitamin C. Severity of akathisia comes and goes, but is constant to some degree. Hard to leave house, and cannot be home alone. (Retired)

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Muddles - keep fighting - it's the only way.

 

xxxx

15 yrs on 20 to 30 mgs CITALOPRAM.  MAY 2014 Increased to 40 mgs per day.SEPT/NOV 2014 tapered in 6 weeks down to 10 mgs as per Dr instructions due to violent nightmares/palpitations.Given Noctamid (lormetazepam) to help with anxiety. On average took 2mg per day for 8 weeks.No taper was advised.DEC 2014 WD severe. Nervous tic in eyes and limbs, muscle pain,fluct  temp, weakness, dep and anxiety, nausea, giddy, unstable when walking. Different Dr suggested taking 20mgs CIT. BROMAZEPAM 3mgs up to 3 x daily for anxiety.DEC 9 2014 Updose CIT to 30mgs. Only taking BROMAZEPAM in emergency.DEC 31 2014 Settling at 30mg CIT - helping with depression. No Brom for 2wks.Found SA.APR 2015 Trying to stabilise on 30mgs CIT.  JAN 2016 Started Cit Taper reducing by 5% per month.  28.5 mgs 
FEB  Taper held bereavement. APR Taper resumed 27mgs . MAY 25.50 mgs .  JUNE 24 mgs .  JULY I stupidly mixed up my BP meds with CIT. Consequently took no CIT for 3 days and doubled my BP meds. Waiting for the fallout....Holding for a while until any chance of repercussions have abated. SEPT taper resumed to  22.5 mgs . OCT 21 mgs .NOV 19.95 mgs DEC crashed. 2017: FEB 3rd updose to 20.5 mgs to try to stabilise.FEB.switched over to 75mgs of Venlafaxine XR for 3 weeks.Too stimulating so switching back to Cit. 12 March 37.5 Ven and 20 Cit. 21 March 18mg Ven 20mg Cit. 4 April 9mg Ven 20mg Cit. Xanax .50mg when needed.  13 April 0 mgs Ven, 20mg Citalopram. Xanax .50 mg per day. 5 May reinstated a small amount of Ven to stabilize  1 mg twice a day. 20 mg Citalopram at night. Xanax .25 mg twice per day.Other Meds: Losartan (BP)Started 1993 at  50 mgs at night.  Seretide (Asthma) Started 1996 at 1 puff twice a day. Jan 2019 Antibiotic Ceclor 500mgs twice a day for bronchitis and  Atrovent 2ml capsules twice a day for asthma. Finished the course of both Jan 17. 

XANAX  Jan 27  - Feb 3 2019 Failed Valium Crossover.   Feb 14 2019  Updosed Xanax by .0625  Feb 17 2019 Decreased Xanax by .0625. Back to .50mg daily.  Update Xanax 28.2.20 tapered to .1250 mg 8am .25 mg midnight. Update Xanax 11.8.21 tapered to .25 mg at night. 

Current Meds 28.2.19: CITALOPRAM  20mg  taken at midnight. VENLAFAXINE  .9 mg twice a day at 8am and 10pm.  XANAX .50 mg split into 4 doses per day. 10am .0625mg / 2pm .1250mg/ 6pm .0625mg / midnight .25mg.Update 10.8.22 .25 mg at night.  LOSARTAN 50 mgs taken at midnight.  SERETIDE 1 puff taken at 8am and 10pm.   7.7.19 VENLAFAXINE UPDATE: Started tapering 10% every 4 weeks. Currently .4 mg twice a day at 8am and 10 pm.  2.9.19 .36 mg x 2. 1.10.19  .32 mg x 2. 26.11.19 .29 mg x2. 26.12.19 .26 mg  x 2. 23.1.20  .23 mg x 2.  20.2.20 .21 mg x2.20.3.20  .19 mg x 2. 21.4.20 .17 mg x 2. 19.5.20 .13 mg x 2.  18.6.20 .11mg  x 2 .18.7.20.10 mg x 2.1.9.20.09 mg x 2. 30.9. 20 .08 mg x 2. 1.11.20 .07 mg x 2.  2.12.20 .06 mg x 2.  8.1.21 .05 mg x 2.  4.2.21 .04 mg x 2. 9.3.21 .03 mgx2.  7.4.21  .02 mg x 2.  9.5.21 .01 mg x 2.  21.6.21 .01 mg x 1.  11.8.21 ZERO!

 

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Proud of you Muddles, please let me know ASAP when you get your results back. I'm still fighting through every day but it's definitely easier than it was. I think of you guys here on SA a lot. It's hard for me to move on even when I'm feeling better because of the agony that we have all endured is life changing. I will never forget it or get over it as long as I live. No one that hasn't experienced this could ever understand.

Diagnosed: Pure O Ocd, Severe Anxiety Disorder NOS, PMDD

 

November 2009 - May 2013- CIPRALEX 20mg

C/T off 20mg Cipralex

Went into dark depression (never experienced before med)

September 2013 - March 2014- PROZAC 20mg

Weaned down to 10mg and held

October 1st 2014 C/T off 10mg Prozac

Protracted withdrawal - 8 months of the most horrific suffering imaginable

June 1st 2015 - ZOLOFT 25mg

June 26th 2015 - Dose increase to 50mg of Zoloft (taken at night after dinner). Slowly improving but still have severe OCD/ruminating, intense DP/DR, and brain fog. Just trying to stabilize at this point.

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Ok - did a home test that looks for heavy metals. From the test - it looks like I have mecury present. What do I do now? Should I do some further testing?

 

Was very stupid yesterday and had a bit of my sisters Chinese so didn't sleep a wink last night. Palpitations, sweating, constant random thoughts and severe head pain. Must have been the MSG in there. I'm so tired guys...the thick brain fog never leaves me. I'M sick of being so sick now. It's like sufferering the worst mental pain and suffering ever with some kind of cancer on top...induced by these stupid pills. I don't think I can ever be normal again. No breaks from this hell in 18 months now.

 

Justeanttobefree - I am pleased you are doing better. I can understand why it is hard for you to move on. Even if I did get a bit better - I would never get over what I've lost, what's it's done to my children etc. How would I ever get back to life? I can't imagine a life ever again. It's took so much from me.

2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription.

Severe adverse reaction

Mirtazapine prescribed - adverse reaction but told to stay on.

Poop out - December 2013

15mg

Currently on 13.5mg,

April 12mg

May 10th - 11mg

June 10th - 10mg

July 8th - 9mg

September - 0mg

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Second summer with me not being able to function to do anything with my children. How many more? my husband is having to have time off from his business. We are up to our eyeballs in debt...going to lose the house no doubt.

What an awful crime this is.

2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription.

Severe adverse reaction

Mirtazapine prescribed - adverse reaction but told to stay on.

Poop out - December 2013

15mg

Currently on 13.5mg,

April 12mg

May 10th - 11mg

June 10th - 10mg

July 8th - 9mg

September - 0mg

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Hey Muddles, 

 

just stopping by to give you a hug! Where did you get that heavy metal test done? 

 

Even if I did get a bit better - I would never get over what I've lost, what's it's done to my children etc. How would I ever get back to life? I can't imagine a life ever again. It's took so much from me.

I think you'll be surprised. I've read from many people who say you kinda forget the pain. They say it seems very distant after a while. Probably a year or so has to pass after the symptoms are gone, but then I think it will be hard to recall how horrible it was rather than hard to forget it.

 

I really, really hope you get a break from these horrible symptoms soon! 

 

((hugs)) 

 

Laura

Feb 2015 Took venlafaxine for 5 days only... experienced withdrawal that made me completely non-functional

Mar 2015 took under 1mg of Sertraline for 10 days in an attempt to combat Venlafaxine withdrawal. Got adverse reactions. 

After stopping Sertraline, withdrawal got much worse. New, horrific symptoms. 

June 2015 Still non-functional but slowly getting better. Still brain zaps, migraines, sweating, heart racing, depression, crying spells

September 2015: 24/7 brain zaps, twitches in the face, no concentration, bad memory, language skills deteriorating. 

 

Profile feed: http://goo.gl/3g2GRn

 

Sign this petition for a blackbox warning on Prozac in Ireland:

https://www.change.org/p/leo-varadakar-hpra-the-lack-of-a-blackbox-warning-on-prozac-in-ireland-and-its-use-by-the-hse-in-under-18-s?recruiter=63289046&utm_source=share_petition&utm_medium=facebook&utm_campaign=share_for_starters_page&utm_term=des-lg-no_src-no_msg

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Thanks Laura.

 

It was a cheap testing kit off amazon. Tested urine but then I have read somewhere that it better to be tested in other ways. Not sure. Everything is such a battle to get done...just typing this is huge. I am going to start juicing - a lot of beetroot as this is supposed to be fantastic for the brain, helps increase blood flow etc. I got the juicer a couple of weeks ago - just need to set it up. :-(

2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription.

Severe adverse reaction

Mirtazapine prescribed - adverse reaction but told to stay on.

Poop out - December 2013

15mg

Currently on 13.5mg,

April 12mg

May 10th - 11mg

June 10th - 10mg

July 8th - 9mg

September - 0mg

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I think there is info online re. Reversing metal toxicity.. I think it involves diet..loads of green veg and supplements but I know you prob wouldn't be able to tolerate supplements..could you get the part of your filling removed?

2000 - sertraline for job anxiety low confidence (17 years old) ..which turned the next 16 years into nightmare!

 

On/off sertraline severe withdrawals every time. 2014 - felt better as reduced dose of sertraline no more inner restlessness. Doctor rushed off again. Hit severe withdrawal. Lost the little I had in life. Couldn't get stable again on 12.5mg. Was switched to prozac. Had severe reaction to prozac..came off in November 2015 at 6mg as felt more confused and damaged on it..Even more withdrawal ..rage, depression, dyphoria, near constant suicidal ideation, self harm impulses, doom, concrete block in head, unable to do much of anything with this feeling in head..went back on 6mg of sertraline to see if would alleviate anything. It didn't..reduced from December to June 2016 came off at 2.5mg sertraline as was hospitalised for the severe rage, suicidal impulses, and put on 50mg lofepramine which in 2nd week reduced all symptoms but gave insomnia which still have..psych stopped lofepramine cold turkey..no increased withdrawal symptoms new symptoms from lofepramine except persistant insomnia which has as side effect.

 

Taking Ativan for 8 months for the severe rage self harm impulses 1-3 times a week (mostly 2 times a week) at .5mg. Two months (I'm unsure exactly when the interdose started to happen) ago interdose withdrawal seemed to happen..2 days I think after the Ativan.

 

 

Nightmare that could have been avoided!

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Thanks Laura.

 

It was a cheap testing kit off amazon. Tested urine but then I have read somewhere that it better to be tested in other ways. Not sure. Everything is such a battle to get done...just typing this is huge. I am going to start juicing - a lot of beetroot as this is supposed to be fantastic for the brain, helps increase blood flow etc. I got the juicer a couple of weeks ago - just need to set it up. :-(

So sorry it's all such a struggle! I wish I had a magic wand and I could heal everybody :(

 

Yuck... beetroot.... I tried recently but I couldn't get myself to eat/ drink it. If it turns out helping you, I'll try again. At least then, I'll have a proper reason for having nausea other than psych drug brain damage... 

Feb 2015 Took venlafaxine for 5 days only... experienced withdrawal that made me completely non-functional

Mar 2015 took under 1mg of Sertraline for 10 days in an attempt to combat Venlafaxine withdrawal. Got adverse reactions. 

After stopping Sertraline, withdrawal got much worse. New, horrific symptoms. 

June 2015 Still non-functional but slowly getting better. Still brain zaps, migraines, sweating, heart racing, depression, crying spells

September 2015: 24/7 brain zaps, twitches in the face, no concentration, bad memory, language skills deteriorating. 

 

Profile feed: http://goo.gl/3g2GRn

 

Sign this petition for a blackbox warning on Prozac in Ireland:

https://www.change.org/p/leo-varadakar-hpra-the-lack-of-a-blackbox-warning-on-prozac-in-ireland-and-its-use-by-the-hse-in-under-18-s?recruiter=63289046&utm_source=share_petition&utm_medium=facebook&utm_campaign=share_for_starters_page&utm_term=des-lg-no_src-no_msg

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YAY muddles I KNEW you had Mercury toxicity - besides WD the symptoms you describe follow Mercury toxicity to a T. Google it!! Now you need to find a NP who can instruct you about detox and like L&L said, diet will play a big part. This is not hopeless sweetie, you are going to beat this I promise!!!

Diagnosed: Pure O Ocd, Severe Anxiety Disorder NOS, PMDD

 

November 2009 - May 2013- CIPRALEX 20mg

C/T off 20mg Cipralex

Went into dark depression (never experienced before med)

September 2013 - March 2014- PROZAC 20mg

Weaned down to 10mg and held

October 1st 2014 C/T off 10mg Prozac

Protracted withdrawal - 8 months of the most horrific suffering imaginable

June 1st 2015 - ZOLOFT 25mg

June 26th 2015 - Dose increase to 50mg of Zoloft (taken at night after dinner). Slowly improving but still have severe OCD/ruminating, intense DP/DR, and brain fog. Just trying to stabilize at this point.

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Lol at yay jwtbf..

 

Don't think we are happy that you have mercury toxicity but if it's something you can treat, it gives you back a little control.

Wishing you all the best xxx

2000 - sertraline for job anxiety low confidence (17 years old) ..which turned the next 16 years into nightmare!

 

On/off sertraline severe withdrawals every time. 2014 - felt better as reduced dose of sertraline no more inner restlessness. Doctor rushed off again. Hit severe withdrawal. Lost the little I had in life. Couldn't get stable again on 12.5mg. Was switched to prozac. Had severe reaction to prozac..came off in November 2015 at 6mg as felt more confused and damaged on it..Even more withdrawal ..rage, depression, dyphoria, near constant suicidal ideation, self harm impulses, doom, concrete block in head, unable to do much of anything with this feeling in head..went back on 6mg of sertraline to see if would alleviate anything. It didn't..reduced from December to June 2016 came off at 2.5mg sertraline as was hospitalised for the severe rage, suicidal impulses, and put on 50mg lofepramine which in 2nd week reduced all symptoms but gave insomnia which still have..psych stopped lofepramine cold turkey..no increased withdrawal symptoms new symptoms from lofepramine except persistant insomnia which has as side effect.

 

Taking Ativan for 8 months for the severe rage self harm impulses 1-3 times a week (mostly 2 times a week) at .5mg. Two months (I'm unsure exactly when the interdose started to happen) ago interdose withdrawal seemed to happen..2 days I think after the Ativan.

 

 

Nightmare that could have been avoided!

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Muddles,

 

The urine test is a start. Now you need a doctor to help you reverse the toxicity. Take the at home test results with you to the doctor. Get the mercury fillings removed by a dentist and replace them with porcelain.

 

You are on your way now. You have something concrete to work on that will improve the quality of your life.

 

Bless you, sweetheart. Love, Pug

January 2012 - Prescribed 900mg gabapentin and 30mg Norco for lower lumber spinal stenosis pain.

September 2013 - Spinal fusion surgery, 6 levels. Hospital ramped up meds 1500mg gabapentin, 100mg Norco, 80mg Oxycontin, 25mg Fentanyl patch.

January 2014 - Sever nausea daily and with back pain every 4 hours. 2 trips to ER. First endoscopy found ulcer. Treated with Sucralfate and PPI. Second endo in May found no ulcers. Doctors said it was the opiates causing the nausea. CT'd Oxycontin, Fentanyl patch.

July 2014 - Lost 48 lbs. due to not eating because of severe nausea. GP prescribed Prozac 20mg and Ativan 2mg prn. Tried for 4 days, quit. Two week followup GP said keep taking Prozac. 4 days, quit again. Ativan taken rarely prn for anxiety and appetite.

August 2014 - Went to detox. Off opiates. Still nauseous, helmet head, drugged feeling. Doctor CT'd gabapentin. Ended up in ER. Found 2 gallstones. Gabapentin reinstated at 900mg. Tried botched up and down taper to get off Gabapentin. No tapering advice from doctor. Said to just CT again.

September 2014 - Coded on table during gallbladder surgery. Developed liver biloma due to CPR by doctor. Had bile bulb inserted for 2 wks to drain.

October 2014 - Gallbladder removed. Still nauseous, 3am cortisol surging, drugged helmet head, vertigo, breathlessness, whooshing head, heart palps.

November 8th, 2014 - CT'd gabapentin suggested by family and 4 different doctors. Was told no withdrawal is associated with gabapentin. Have been in hell ever since. No windows, just one big tsunami every day with same symptoms for 4 months.

December 26, 2014 - Found SA. At least I know I'm not insane. My family thinks I'm doing this to myself. Akathesia has become unbearable.

March 10, 2015 - In absolute daily hell with no relief. Currently taking magnesium 200mg before bedtime.

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(((Muddles))) at least you have a start towards getting some answers! Good for you!!!

Zoloft 100 mg. daily for Chronic Fatigue Syndrome since Oct. 1994 / Synthroid 88 mcg. daily / Supplements: Neptune Krill Oil-1,000 mg. twice daily/Astaxanthin 10 mg. twice daily/Ubiquinol 100 mg. twice daily (These 3 have allowed me to discontinue (approved by doctor) bp meds I was on. Calcium Citrate 500 mg. daily/Vitamin D3 2,400 iu daily/K2 (MK7) 100 mcg daily (osteopenia and fam. hist. of severe osteoporosis). Stress B Complex (1/2 dose)/Quercetin (for allergies/asthma)/Magnesium (400 mg. oral glycinate and about 50 mg. magnesium chloride spray oil a day, divided throughout day).

Tapered Zoloft about 6 wks. Totally off since the end of July (25-29, 2014). 3 wks. vertigo at end of taper, then 3-4 wks. OK, followed by withdrawal symptoms increasing in severity (nausea, gastric disturbances, loss of appetite, insomnia, restlessness, jitters, anxiety, agitation--jumping out of my skin--possible akathisia?) Seem to have paradoxical reactions to everything new, even Vitamin C. Severity of akathisia comes and goes, but is constant to some degree. Hard to leave house, and cannot be home alone. (Retired)

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Beets juiced are full of betaine....

I am out of time Muddles

 

Charcoal activated was one other thing i DID when I was really sick... I am

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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glad to leave the person beside me has so much perfume... I am going to be sick...peace muddles...

WARNING THIS WILL BE LONG
Had a car accident in 85
Codeine was the pain med when I was release from hosp continuous use till 89
Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year
Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above.
One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking.

As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. 

http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/

There is a crack in everything ..That's how the light gets in :)

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I know how that feels btdt - perfume is the worst.

Did you say you are really ill at the moment? I just don't think we will ever get better until we sort these sensitivities out.....it's not looking good for me here either.

2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription.

Severe adverse reaction

Mirtazapine prescribed - adverse reaction but told to stay on.

Poop out - December 2013

15mg

Currently on 13.5mg,

April 12mg

May 10th - 11mg

June 10th - 10mg

July 8th - 9mg

September - 0mg

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I wonder what it's like to wake with a clear head? This awful concrete brain dead feeling is insane! I think about those poor people in pysch wards banging their head up the walls - it's because their friggin frontal lobe has been destroyed. That's all I want to do all day - bang my head up the wall because I need something to start working in there.

 

Arrrgghhhh - I want my brain back!

2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription.

Severe adverse reaction

Mirtazapine prescribed - adverse reaction but told to stay on.

Poop out - December 2013

15mg

Currently on 13.5mg,

April 12mg

May 10th - 11mg

June 10th - 10mg

July 8th - 9mg

September - 0mg

Link to comment

Can you do more testing, Muddles?   Functional medicine doc?    Or is it just "withdrawal" ??  Alto would say - "withdrawal".  (I think?? ). I had a whole lot of blood tests the other day, and as is usual here, everything was "normal' !!!!   What the ???? . Cholesterol was up, but that's the drugs , in  my humble opinion.  I refuse to go on "statins", because it's more B/S  .  We need "cholesterol" for the brain & longevity.   It's a "chemical maze" & we need to be  "medical detectives". !   Hang in there, we'll get through.   Hugs,  Ali .

Many SSRI's and SSNRI's over 20 years. Zoloft for 7 years followed by Effexor, Lexapro, Prozac, Cymbalta, Celexa, Pristiq, Valdoxan, Mianserin and more - on and off. No tapering. Cold turkey off Valdoxan - end of May 2014

 

                                                  Psych Drug - free since May 2014
.
         

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So sorry, Muddles! Thinking of you. Please hang in there. I know it's not the same that you are going through, but I have been becoming more and more sensitive of smells/chemicals lately (for example exhaust fumes when in the car). We were in an area the other day where they were putting fresh asphalt down, and I thought I was going to die!

Zoloft 100 mg. daily for Chronic Fatigue Syndrome since Oct. 1994 / Synthroid 88 mcg. daily / Supplements: Neptune Krill Oil-1,000 mg. twice daily/Astaxanthin 10 mg. twice daily/Ubiquinol 100 mg. twice daily (These 3 have allowed me to discontinue (approved by doctor) bp meds I was on. Calcium Citrate 500 mg. daily/Vitamin D3 2,400 iu daily/K2 (MK7) 100 mcg daily (osteopenia and fam. hist. of severe osteoporosis). Stress B Complex (1/2 dose)/Quercetin (for allergies/asthma)/Magnesium (400 mg. oral glycinate and about 50 mg. magnesium chloride spray oil a day, divided throughout day).

Tapered Zoloft about 6 wks. Totally off since the end of July (25-29, 2014). 3 wks. vertigo at end of taper, then 3-4 wks. OK, followed by withdrawal symptoms increasing in severity (nausea, gastric disturbances, loss of appetite, insomnia, restlessness, jitters, anxiety, agitation--jumping out of my skin--possible akathisia?) Seem to have paradoxical reactions to everything new, even Vitamin C. Severity of akathisia comes and goes, but is constant to some degree. Hard to leave house, and cannot be home alone. (Retired)

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((((Muddles))))

 

Bless you, sweetheart. You have been suffering terribly for so long. We jumped the same time and I was in tolerance a year before I jumped also.

 

We're going to heal, Muddles. Call the British Tranquiliser Project. Everyone heals. They have talked to over 6,000 people for 20 years and nobody did not fully recover. They will give you hope. You are healing, sweetheart. We are healing.

 

Love, Pug

January 2012 - Prescribed 900mg gabapentin and 30mg Norco for lower lumber spinal stenosis pain.

September 2013 - Spinal fusion surgery, 6 levels. Hospital ramped up meds 1500mg gabapentin, 100mg Norco, 80mg Oxycontin, 25mg Fentanyl patch.

January 2014 - Sever nausea daily and with back pain every 4 hours. 2 trips to ER. First endoscopy found ulcer. Treated with Sucralfate and PPI. Second endo in May found no ulcers. Doctors said it was the opiates causing the nausea. CT'd Oxycontin, Fentanyl patch.

July 2014 - Lost 48 lbs. due to not eating because of severe nausea. GP prescribed Prozac 20mg and Ativan 2mg prn. Tried for 4 days, quit. Two week followup GP said keep taking Prozac. 4 days, quit again. Ativan taken rarely prn for anxiety and appetite.

August 2014 - Went to detox. Off opiates. Still nauseous, helmet head, drugged feeling. Doctor CT'd gabapentin. Ended up in ER. Found 2 gallstones. Gabapentin reinstated at 900mg. Tried botched up and down taper to get off Gabapentin. No tapering advice from doctor. Said to just CT again.

September 2014 - Coded on table during gallbladder surgery. Developed liver biloma due to CPR by doctor. Had bile bulb inserted for 2 wks to drain.

October 2014 - Gallbladder removed. Still nauseous, 3am cortisol surging, drugged helmet head, vertigo, breathlessness, whooshing head, heart palps.

November 8th, 2014 - CT'd gabapentin suggested by family and 4 different doctors. Was told no withdrawal is associated with gabapentin. Have been in hell ever since. No windows, just one big tsunami every day with same symptoms for 4 months.

December 26, 2014 - Found SA. At least I know I'm not insane. My family thinks I'm doing this to myself. Akathesia has become unbearable.

March 10, 2015 - In absolute daily hell with no relief. Currently taking magnesium 200mg before bedtime.

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I just fear this is my life - apathetic, emotionally dead, so many friggin sensitivities that I can't do jack. Depression - the tardive shite that may never leave and to think I may never experience any kind of pleasure again?! I'm so depressed today. what is the actual point of living this dead life? To think that before all of this I was so easily pleased, got excited over the smallest things in life. What right have these drug companies got to take a life from someone like this? Why aren't they paying for this evil, cruel curse?

2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription.

Severe adverse reaction

Mirtazapine prescribed - adverse reaction but told to stay on.

Poop out - December 2013

15mg

Currently on 13.5mg,

April 12mg

May 10th - 11mg

June 10th - 10mg

July 8th - 9mg

September - 0mg

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I'd like to know the same thing, Muddles. I told my husband and daughter this morning, "I just feel brain damaged.". I feel like I am walking around in a fog.

 

So sorry for your suffering.

 

XOXO

Zoloft 100 mg. daily for Chronic Fatigue Syndrome since Oct. 1994 / Synthroid 88 mcg. daily / Supplements: Neptune Krill Oil-1,000 mg. twice daily/Astaxanthin 10 mg. twice daily/Ubiquinol 100 mg. twice daily (These 3 have allowed me to discontinue (approved by doctor) bp meds I was on. Calcium Citrate 500 mg. daily/Vitamin D3 2,400 iu daily/K2 (MK7) 100 mcg daily (osteopenia and fam. hist. of severe osteoporosis). Stress B Complex (1/2 dose)/Quercetin (for allergies/asthma)/Magnesium (400 mg. oral glycinate and about 50 mg. magnesium chloride spray oil a day, divided throughout day).

Tapered Zoloft about 6 wks. Totally off since the end of July (25-29, 2014). 3 wks. vertigo at end of taper, then 3-4 wks. OK, followed by withdrawal symptoms increasing in severity (nausea, gastric disturbances, loss of appetite, insomnia, restlessness, jitters, anxiety, agitation--jumping out of my skin--possible akathisia?) Seem to have paradoxical reactions to everything new, even Vitamin C. Severity of akathisia comes and goes, but is constant to some degree. Hard to leave house, and cannot be home alone. (Retired)

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I'm sorry for you too Luv & everyone else here.

 

Wish I could be more supportive but I'm so apathetic - to the point of rather peeing my pants than getting out of bed to go to the toilet. Nice.

2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription.

Severe adverse reaction

Mirtazapine prescribed - adverse reaction but told to stay on.

Poop out - December 2013

15mg

Currently on 13.5mg,

April 12mg

May 10th - 11mg

June 10th - 10mg

July 8th - 9mg

September - 0mg

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