Martina23 Posted December 7, 2015 Share Posted December 7, 2015 Muddles, how are you? Is it better than one week ago? I have a new symptom myself, it feels today like cement head. It is like nothing comes to my head, I am thinking, thinking and I just can´t make connection in my head. It is terrible by writing, because you just sit there and it does not really come to you what you want to write. Do you also head it or is it only me? 05/2013 Lyrica 100 mg / per day for pain + PGAD resulting from caesarian delivery11/2014 started to taper: 50 mg per day/ for one week then c/tafter one month reinstated at 50 mg /per days of 10 July 2015 drug free- symptoms OCD Link to comment
Muddles Posted December 7, 2015 Author Share Posted December 7, 2015 Hi martina! Yes I have this. Sorry you have this too. It's awful. I've heard people have it and said it has gone so it will for you. I am no better. We had a new rug out down in the bedroom yesterday and I started getting very sick. I couldn't understand what was happening but then found out that those with MCS struugle with new carpets and furniture. In really bad pain and struggling to breath today. There has been no change but I'll be sure to post when there is. Something needs to because I am so tired now. 2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription. Severe adverse reaction Mirtazapine prescribed - adverse reaction but told to stay on. Poop out - December 2013 15mg Currently on 13.5mg, April 12mg May 10th - 11mg June 10th - 10mg July 8th - 9mg September - 0mg Link to comment
AliG Posted December 7, 2015 Share Posted December 7, 2015 Muddles, How do you know about T . Girl What happened ? Many SSRI's and SSNRI's over 20 years. Zoloft for 7 years followed by Effexor, Lexapro, Prozac, Cymbalta, Celexa, Pristiq, Valdoxan, Mianserin and more - on and off. No tapering. Cold turkey off Valdoxan - end of May 2014 Psych Drug - free since May 2014 . Link to comment
ricardo7 Posted December 8, 2015 Share Posted December 8, 2015 Hi Muddles! How are you? the nightmare is continued?? I want to tell me something if you want Muddles. Did you ask dr Healy about ΕΗS? I am afraid so much about this because my PC and phone are the only things I enjoy... Do you think is a real problem for us? I dont Know anymore. Have patience! Since you are free-med the recovery is always possible... 4 times on SSRI'S in the past, I have never had such serious problems. Septemper 2013-November 2013: Paxil (60mg) After discontinuation (cold turkey):anhedonia, severe emotional anesthisia, severe PSSD. xanax: daily use for 4.5 years at doses 0.5 mg -1.5mg. taper september 2014 from 1.5mg. current dose: 0.87,5 mg.(8AM, 2PM, 8PM, 00-01AM) Link to comment
Muddles Posted December 8, 2015 Author Share Posted December 8, 2015 Hi Ricardo! Yes the nightmare lives on!! How are you doing? I mentioned EHS to Dr Healy but he had never heard of it. I am always very wary of speaking about it as it is not recognised and most are mocked as having a mental illness for thinking such things. It has not been proven yet although it's coming....the pandemic is coming and most of these people have not even been drug damaged! It is a killer for me. That and the chemical sensitivity. I only point of call for contact is being online - I have many people who support and help me on facebook etc. So I have to suffer but limit my time. Its like everything in my life is effected by rhis drug damage. I wouldn't worry too much - I have not seen a lot of this from people in withdrawal. A couple of people have said they would get headaches or other strange things but not to the extreme I have. I'm sure you will be fine. 2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription. Severe adverse reaction Mirtazapine prescribed - adverse reaction but told to stay on. Poop out - December 2013 15mg Currently on 13.5mg, April 12mg May 10th - 11mg June 10th - 10mg July 8th - 9mg September - 0mg Link to comment
Muddles Posted December 8, 2015 Author Share Posted December 8, 2015 I am in touch with a young girl who was on Ritalin and she couldn't sleep on it so was on the computer 24/7 for a long time. She developed EHS. I will say you should try and turn off computers a couple of hours before sleep and definitley put phone on Flight mode whilst you sleep. 2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription. Severe adverse reaction Mirtazapine prescribed - adverse reaction but told to stay on. Poop out - December 2013 15mg Currently on 13.5mg, April 12mg May 10th - 11mg June 10th - 10mg July 8th - 9mg September - 0mg Link to comment
Muddles Posted December 8, 2015 Author Share Posted December 8, 2015 Earthing mats are good too. Take a look. Worth buying and using I think - especially for anyone who spends a lot of time on the computer. 2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription. Severe adverse reaction Mirtazapine prescribed - adverse reaction but told to stay on. Poop out - December 2013 15mg Currently on 13.5mg, April 12mg May 10th - 11mg June 10th - 10mg July 8th - 9mg September - 0mg Link to comment
btdt Posted December 9, 2015 Share Posted December 9, 2015 Hi Ricardo! Yes the nightmare lives on!! How are you doing? I mentioned EHS to Dr Healy but he had never heard of it. I am always very wary of speaking about it as it is not recognised and most are mocked as having a mental illness for thinking such things. It has not been proven yet although it's coming....the pandemic is coming and most of these people have not even been drug damaged! It is a killer for me. That and the chemical sensitivity. I only point of call for contact is being online - I have many people who support and help me on facebook etc. So I have to suffer but limit my time. Its like everything in my life is effected by rhis drug damage. I wouldn't worry too much - I have not seen a lot of this from people in withdrawal. A couple of people have said they would get headaches or other strange things but not to the extreme I have. I'm sure you will be fine. I am assuming EHS is environmental hypersensitivity I have researched it under the title multiple chemical sensitivity. I have it. Sorry you are suffering with this too...Muddles and Hi long time... When I was researching this under MCS I looked at housing for such problems and they suggest a room or space for off gassing such items as new rugs. Something I would do with the rug if it were mine... it would go someplace else till it no longer made me sick or in the garbage... I have struggled with this a lot and have thrown so many things away... all cosmetics in my space that I own are gone all perfume except one that was a gift from a special no longer with us person it has been contained. A lot of money has went into the garbage and it is hard to do at first I also thru out most of my clothes as I assume I will never wear them again ... not that I go anyplace to wear them. In some odd way it was freeing not waiting to have the tide turn and accepting this as fact and getting on with making my life more livable. I no longer care who believes me and what they think I have reached out to an enviromental health unit here in my province and tho they have a very long waiting list better late than never. They say they can't treat me but they can advise my own doctor and myself on how to care for this disorder. Maybe if you search under the MCS term there will be a like place in your area. Thanks for talking about Dr Healys take on this I have toyed with the idea of getting an assesment online by him and all the problems I am having with drugs but if he does not know this part it makes me doubt his understanding of the entire process. I hope things get better for you... put the rug in the shed if you have one till it is no longer bad for you... some things for me never lost their effect ... especially things from china even clothes... gone gone gone. I wish you peace WARNING THIS WILL BE LONG Had a car accident in 85 Codeine was the pain med when I was release from hosp continuous use till 89 Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above. One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking. As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/ There is a crack in everything ..That's how the light gets in Link to comment
Muddles Posted December 9, 2015 Author Share Posted December 9, 2015 EHS is electromagnetic hyper senstive http://www.weepinitiative.org/areyou.html I wouldn't be suprised if you have this too btdt. I didn't realise I had it - thought I was just light sensitive until I was hiding under my covers in bed away from what I thought was the light from the TV but was still suffering with severe pain etc. Then I was sitting next to my son who opened his laptop - the pain started and brain fog worsened, depression etc - I wasn't even looking at the screen. That's when I researched and found out. Even standing by the tumble dryer the other day was making me ill!! It's sounds absolutely crazy and I don't tell a lot of people because I would never have believed it myself. Doctor Healy does know about not being able to tolerate medications - he has written to my doctor about it so thank God it will be on my notes. He had not heard of EMF/EHS sensitivity - I told him that I know it sounds psychotic - he said it doesn't. EHS and MCS usually go hand in hand. When I am exposed to chemicals the EHS gets worse. It's a vicious circle. What I should and need to do is stay away from my computer altogether but because of the other symptoms I have - I am not able to enjoy or participate in any other normal kind of life. The Internet is my lifeline yet it's killing me if that makes sense? 2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription. Severe adverse reaction Mirtazapine prescribed - adverse reaction but told to stay on. Poop out - December 2013 15mg Currently on 13.5mg, April 12mg May 10th - 11mg June 10th - 10mg July 8th - 9mg September - 0mg Link to comment
AliG Posted December 9, 2015 Share Posted December 9, 2015 Hi Muddles, I'm so sorry that you are struggling. I was so shocked about the sad news, that I forgot to say how very sorry I am, that you are still in pain and symptomatic. I hope you find some relief soon. It does make sense ( internet ) . It's not your fault . You are just dealing with the " fallout", from this chemical experiment we have all been exposed to, in varying degrees of magnitude. I hope you find some relief from your symptoms, but in the meantime know that healing is happening anyway. Ali Many SSRI's and SSNRI's over 20 years. Zoloft for 7 years followed by Effexor, Lexapro, Prozac, Cymbalta, Celexa, Pristiq, Valdoxan, Mianserin and more - on and off. No tapering. Cold turkey off Valdoxan - end of May 2014 Psych Drug - free since May 2014 . Link to comment
Muddles Posted December 9, 2015 Author Share Posted December 9, 2015 Thank you Ali....that is so nice of you. The news was awful and really sent me over the edge - I'm so sorry you have been so effected too. Everytime I hear of someone passing in this it really throws me. Someone said I would get used to it but I don't think I ever could. I hope you are coping. Sending some healing hugs your way. Stay strong. 2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription. Severe adverse reaction Mirtazapine prescribed - adverse reaction but told to stay on. Poop out - December 2013 15mg Currently on 13.5mg, April 12mg May 10th - 11mg June 10th - 10mg July 8th - 9mg September - 0mg Link to comment
AliG Posted December 9, 2015 Share Posted December 9, 2015 Thank you Muddles. I don't think we can ever get used to it, and I hope we don't , quite honestly. It is shocking and it does " throw " us, and quite rightly . It is so sad . Thanks for the hugs. Right back at you. Many SSRI's and SSNRI's over 20 years. Zoloft for 7 years followed by Effexor, Lexapro, Prozac, Cymbalta, Celexa, Pristiq, Valdoxan, Mianserin and more - on and off. No tapering. Cold turkey off Valdoxan - end of May 2014 Psych Drug - free since May 2014 . Link to comment
KT38 Posted December 9, 2015 Share Posted December 9, 2015 I know someone who had a bad reaction while trying to reinstate after 8 months off Zoloft and then she could not be on the computer or watch tv for over a year. She is about 2.5-3 years off and is working part time and that part doesn't bother her anymore, although she has nerve issues. So, hopefully it will pass. When I'm on my computer it feels like all the light is taking over my brain and my eyes feel they are going to pop out. Dec 2014 I tried Zoloft 25mg for one week (adverse reaction - extreme anxiety and felt like I was on an amphetamine). Dr. said to quit cold turkey, so I not only quit Zoloft but also 2 weeks of Xanax .25mg -- extreme dizziness, hyperarousal and anxiety began! On Jan. 29, 2015 my psychiatrist put me on new stuff and this is how my next 2 months and 7 days looked like (I was having the same bad reactions to all of these):Effexor XR 37.5mg (3 days) - throwing up, heart palpations, night tremors/convulsions or something where whole body shakes for a second, Prozac 10mg (15 days), Prozac 20mg (7 days) - internal restlessness, electric current through body/brain (not zaps), agitation, intense fear and could no longer nap at this point (still can't today because of this), Lexapro 5mg (4 days) - same as Prozac, a horror show...extreme internal agitation, Lexapro 7.5mg (2 days), Lexapro 10mg (16 days), Zoloft 12.5mg (3 days)...she said try it again since my blood relative does well on it, Zoloft 25mg (7 days) - same as before and getting worse!! Zoloft 50mg (6 days), Zoloft 25mg (4 days and then came off cold turkey on April 8, 2015). I used Xanax .25mg about 7 times per month through all of this until June 30, 2015 (my last benzo dose). Extreme anxiety, nervous system traumatized, mental akathisia, anger triggered by nothing but the brain totally going off on its own, feeling of a pressurized electric current going through me like my brain and body are trying to explode, stress reaction x10000 to everything, waking in terror lasting all day, fear, very sensitive, brain can't keep up, don't know what to do with myself, feeling like everything is going too fast and I can't keep up, helium head, deep depression like something is ripping out my soul, out of my mind, can hardly drive or be alone, cognitive issues, simple tasks are so complex and straining, feel disturbed because the brain can't process anything right even though your brain tries so hard and it makes you go mad, episodes of deep anguish with a sick toxic poison feeling (like you have some unknown virus). Link to comment
Muddles Posted December 9, 2015 Author Share Posted December 9, 2015 It's been nearly two years for me and getting worse. This drugs are so toxic. I've been told a spect scan would show brain damage - I am in touch with a few people with MCS and they said their spect scan showed brain damage. I can't have it though because it would make the EHS worse and I can't risk that. What I want is peace now. Today has been an awful day of questioning myself if I should be calling for an ambulance because the pain is unbearable and I've been in and out of that awful coma like sleep....not knowing where I am or who I am until an hour after being fully awake. It's no life. My husband is tired. He's playing mum and dad and still having to work with no help. He's exhausted and cracking up. Im really, really at my wits end. if someone told me I could leave this world right now I would not even think twice and that's the way it has been for nearly two years - day in, day out...even on the better days. It's more than what I can tolerate and I have tolerated so much, for too long. I am not weak. I feel like a mutant - I'm no longer a human. 2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription. Severe adverse reaction Mirtazapine prescribed - adverse reaction but told to stay on. Poop out - December 2013 15mg Currently on 13.5mg, April 12mg May 10th - 11mg June 10th - 10mg July 8th - 9mg September - 0mg Link to comment
Martina23 Posted December 9, 2015 Share Posted December 9, 2015 Muddles, I think at the end of the day the most important for your family is your presence. For your husband and also for your children, that you are with them, that they they can speak with you and feel that their mum is here with them. I am also not feeling better, but dont think about dying, we have to go through it, some day it comes to a break through and it will get better. 05/2013 Lyrica 100 mg / per day for pain + PGAD resulting from caesarian delivery11/2014 started to taper: 50 mg per day/ for one week then c/tafter one month reinstated at 50 mg /per days of 10 July 2015 drug free- symptoms OCD Link to comment
Muddles Posted December 9, 2015 Author Share Posted December 9, 2015 I'm sorry for the rant. I lost it. Thanks Martina. 2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription. Severe adverse reaction Mirtazapine prescribed - adverse reaction but told to stay on. Poop out - December 2013 15mg Currently on 13.5mg, April 12mg May 10th - 11mg June 10th - 10mg July 8th - 9mg September - 0mg Link to comment
AliG Posted December 9, 2015 Share Posted December 9, 2015 Muddles, I feel for you. It's beyond, what is tolerable. You have been so strong & patient. No one should have to endure this pain. You have to hang on , though. There is no other alternative ! I think Martina is right. They need your presence. ! Keep breathing , minute by minute. Hour by hour. Day by day . It will get better, even if it takes another few years ! You are strong and will get through this ! Ali Many SSRI's and SSNRI's over 20 years. Zoloft for 7 years followed by Effexor, Lexapro, Prozac, Cymbalta, Celexa, Pristiq, Valdoxan, Mianserin and more - on and off. No tapering. Cold turkey off Valdoxan - end of May 2014 Psych Drug - free since May 2014 . Link to comment
ricardo7 Posted December 9, 2015 Share Posted December 9, 2015 Thank you Muddles. I understand you, it's the most unbearable life ever. I cant walk from the weakness and imbalance.. Seriously...I feel I have the Everest mountain in my head. All functions in my body are damaged, No libido, no emotions, nothing! F#CK BIG PHARMA 4 times on SSRI'S in the past, I have never had such serious problems. Septemper 2013-November 2013: Paxil (60mg) After discontinuation (cold turkey):anhedonia, severe emotional anesthisia, severe PSSD. xanax: daily use for 4.5 years at doses 0.5 mg -1.5mg. taper september 2014 from 1.5mg. current dose: 0.87,5 mg.(8AM, 2PM, 8PM, 00-01AM) Link to comment
Muddles Posted December 9, 2015 Author Share Posted December 9, 2015 I try and hold this despair back but its really hard. I just know there is damage because I feel it and it's never changed and that scares me. Yes f**k big pharma. Like a bloody holocaust!! 2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription. Severe adverse reaction Mirtazapine prescribed - adverse reaction but told to stay on. Poop out - December 2013 15mg Currently on 13.5mg, April 12mg May 10th - 11mg June 10th - 10mg July 8th - 9mg September - 0mg Link to comment
KT38 Posted December 10, 2015 Share Posted December 10, 2015 I completely understand Muddles. I can't believe how screwed I got just for trying out these damn meds for 2 months....I have helium head, dizziness, every nerve in my body and head is heightened and you describe the coma-like feeling and not knowing who or where you are perfectly. It breaks my heart that I am such a crappy mom right now not playing with them or laughing. I can't remember the last time I made a proper dinner. Are you able to care for your kids or go grocery shopping? I just wish I could make a list and go to the store and buy what we need. I have to depend on my husband now like you. It's waking up everyday like it's Groundhog Day and it's so depressing to know we have to fight all over again today. Everything makes me so upset and mad for no reason and full of anxiety. We will get better, though!!! Keep fighting. Dec 2014 I tried Zoloft 25mg for one week (adverse reaction - extreme anxiety and felt like I was on an amphetamine). Dr. said to quit cold turkey, so I not only quit Zoloft but also 2 weeks of Xanax .25mg -- extreme dizziness, hyperarousal and anxiety began! On Jan. 29, 2015 my psychiatrist put me on new stuff and this is how my next 2 months and 7 days looked like (I was having the same bad reactions to all of these):Effexor XR 37.5mg (3 days) - throwing up, heart palpations, night tremors/convulsions or something where whole body shakes for a second, Prozac 10mg (15 days), Prozac 20mg (7 days) - internal restlessness, electric current through body/brain (not zaps), agitation, intense fear and could no longer nap at this point (still can't today because of this), Lexapro 5mg (4 days) - same as Prozac, a horror show...extreme internal agitation, Lexapro 7.5mg (2 days), Lexapro 10mg (16 days), Zoloft 12.5mg (3 days)...she said try it again since my blood relative does well on it, Zoloft 25mg (7 days) - same as before and getting worse!! Zoloft 50mg (6 days), Zoloft 25mg (4 days and then came off cold turkey on April 8, 2015). I used Xanax .25mg about 7 times per month through all of this until June 30, 2015 (my last benzo dose). Extreme anxiety, nervous system traumatized, mental akathisia, anger triggered by nothing but the brain totally going off on its own, feeling of a pressurized electric current going through me like my brain and body are trying to explode, stress reaction x10000 to everything, waking in terror lasting all day, fear, very sensitive, brain can't keep up, don't know what to do with myself, feeling like everything is going too fast and I can't keep up, helium head, deep depression like something is ripping out my soul, out of my mind, can hardly drive or be alone, cognitive issues, simple tasks are so complex and straining, feel disturbed because the brain can't process anything right even though your brain tries so hard and it makes you go mad, episodes of deep anguish with a sick toxic poison feeling (like you have some unknown virus). Link to comment
btdt Posted December 10, 2015 Share Posted December 10, 2015 Please sign this petition. No black box warning in Ireland and this poor mother is desperately trying to change this. She needs so many signatures. Please. https://www.change.org/p/leo-varadakar-hpra-the-lack-of-a-blackbox-warning-on-prozac-in-ireland-and-its-use-by-the-hse-in-under-18-s?recruiter=63289046&utm_source=share_petition&utm_medium=facebook&utm_campaign=share_for_starters_page&utm_term=des-lg-no_src-no_msg interesting With $160 billion merger, Pfizer moves to Ireland and ... arstechnica.com/.../with-160-billion-merger-pfizer-moves-to-ireland-and... Nov 23, 2015 - Small Dublin-based Allergan will buy Pfizer to form world's largest drug maker. WARNING THIS WILL BE LONG Had a car accident in 85 Codeine was the pain med when I was release from hosp continuous use till 89 Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above. One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking. As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/ There is a crack in everything ..That's how the light gets in Link to comment
btdt Posted December 10, 2015 Share Posted December 10, 2015 EHS I have already suspected I have it I turn off the wi fi and piss people off many days there is nothing on here. I never use a cell phone doubt I will ever own one again. Computer is my downfall too so f--king isolated... this is life here. About the PTSD and the headaches.... I went to a PTSD treatment center and got messed over quite well there came back worse then I left... ptsd treatment I really doubt there is much they can do but tapping helped me... the dsmr I think is for specific trauma they do the watch the finger exercise to make your eyes move as you recall trauma.... now there is trauma and there is trauma and I have had so much of it from drugs more bits from life I will be staring at fingers for years. One thing I have been looking into for the head aches is histamine... looking for natural things but nothing yet I do suspect a lot of the damage done by these drug may well be to the histamine system... they were created based on an antihistamine.... there are 4 different types of histamine H! - H4 I will bet it messes with each type.... put my money on it. another place to start looking if anyone is up to it... wishing you peace Muddles WARNING THIS WILL BE LONG Had a car accident in 85 Codeine was the pain med when I was release from hosp continuous use till 89 Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above. One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking. As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/ There is a crack in everything ..That's how the light gets in Link to comment
Muddles Posted December 10, 2015 Author Share Posted December 10, 2015 I completely understand Muddles. I can't believe how screwed I got just for trying out these damn meds for 2 months....I have helium head, dizziness, every nerve in my body and head is heightened and you describe the coma-like feeling and not knowing who or where you are perfectly. It breaks my heart that I am such a crappy mom right now not playing with them or laughing. I can't remember the last time I made a proper dinner. Are you able to care for your kids or go grocery shopping? I just wish I could make a list and go to the store and buy what we need. I have to depend on my husband now like you. It's waking up everyday like it's Groundhog Day and it's so depressing to know we have to fight all over again today. Everything makes me so upset and mad for no reason and full of anxiety. We will get better, though!!! Keep fighting. thank you. Sorry you are suffering so much too - especially am when you were on short term. This will get better for you. It just takes such a long time. I don't go food shopping etc - my husband does it. My job is to get the chikdren to and back from school and that's too much! The past few days I haven't been able to do that. Today has a little better though. I think the reaction to the carpet and finding out about tgirl just threw me big time. I'm hoping for a miracle window for Christmas! 2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription. Severe adverse reaction Mirtazapine prescribed - adverse reaction but told to stay on. Poop out - December 2013 15mg Currently on 13.5mg, April 12mg May 10th - 11mg June 10th - 10mg July 8th - 9mg September - 0mg Link to comment
Muddles Posted December 10, 2015 Author Share Posted December 10, 2015 Btdt - I also think histamine is big in this. I'll be interested in what you find out. 2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription. Severe adverse reaction Mirtazapine prescribed - adverse reaction but told to stay on. Poop out - December 2013 15mg Currently on 13.5mg, April 12mg May 10th - 11mg June 10th - 10mg July 8th - 9mg September - 0mg Link to comment
btdt Posted December 11, 2015 Share Posted December 11, 2015 I looked up T girl since I did not know her I read some of her posts they could have been mine years back. This is not a game and we are not playing serious stuff is happening here and all around us ... saying so not so much for those of us in it but for others who may be looking in thinking what an interesting site this is... ya you pharma folks who I know are watching... we are not playing here. Sorry it ended up on your thread Muddles... hope you day is good.peace WARNING THIS WILL BE LONG Had a car accident in 85 Codeine was the pain med when I was release from hosp continuous use till 89 Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above. One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking. As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/ There is a crack in everything ..That's how the light gets in Link to comment
btdt Posted December 14, 2015 Share Posted December 14, 2015 https://en.wikipedia.org/wiki/Vasoactive_intestinal_peptide this bit " It is also found in the brain and some autonomic nerves. One region of the brain includes a specific area of thesuprachiasmatic nuclei (SCN), the location of the 'master circadian pacemaker'. The SCN coordinates daily timekeeping in the body and VIP plays a key role in communication between individual brain cells within this region. Further, VIP is also involved in synchronising the timing of SCN function with the environmental light-dark cycle. Combined, these roles in the SCN make VIP a crucial component of the mammalian circadian timekeeping machinery.reminded me of the years I did not sleep well apparently almost all of this docs patients with mcs have low vip above... other places online say it is the new antidepressant... bah humbug..actually it says it functions as an antidepressant... here http://www.ncbi.nlm.nih.gov/pmc/articles/PMC154449/ The doc they are talking of is here he works in mold that damages the brain... he says all his mold people have low vip.... did you come in contact with mold or are there various ways to mess with the brain? Still not clicking right or I would maybe have something figured out already as it is I am limping around mentally... wishing you peace and something to think about.. as if you need more. I am always looking for an answer a way out as long as I am able. There may be something to this but I am not joining the dot just now maybe somebody else will peace WARNING THIS WILL BE LONG Had a car accident in 85 Codeine was the pain med when I was release from hosp continuous use till 89 Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above. One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking. As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/ There is a crack in everything ..That's how the light gets in Link to comment
Martina23 Posted December 24, 2015 Share Posted December 24, 2015 Muddles, merry Christmas and a happy new year. 05/2013 Lyrica 100 mg / per day for pain + PGAD resulting from caesarian delivery11/2014 started to taper: 50 mg per day/ for one week then c/tafter one month reinstated at 50 mg /per days of 10 July 2015 drug free- symptoms OCD Link to comment
Muddles Posted December 25, 2015 Author Share Posted December 25, 2015 Thank you Martina! Just one wish this Christmas would be to have you all healed and happy. Much love and light to everyone. Merry Christmas. 2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription. Severe adverse reaction Mirtazapine prescribed - adverse reaction but told to stay on. Poop out - December 2013 15mg Currently on 13.5mg, April 12mg May 10th - 11mg June 10th - 10mg July 8th - 9mg September - 0mg Link to comment
Destroyed Posted December 25, 2015 Share Posted December 25, 2015 Thank you Muddles. I understand you, it's the most unbearable life ever. I cant walk from the weakness and imbalance.. Seriously...I feel I have the Everest mountain in my head. All functions in my body are damaged, No libido, no emotions, nothing! F#CK BIG PHARMA im the same as you and its sheer hell. no quality of life just a miserable existance. i just cant bear it anymore when will it end. how long have you been like this i have been like it for 3yrs 8mths May 2012 Olanzapine and other anti depressants. Don't know what they were. Sertraline, Flupentixol, Sodium Valporate, Depixol, Lithium, Piportal, Mirtazapine, Lamotrogine, Venlafaxine, Respirodol ECT x 7. Don't know the dates of any of these medications because I can't remember and I have no idea of the doses either. Am no longer on any meds. Take Cod liver oil, Omega 3, B1, Sepia. Still in rehab under section 3 in the UK. I have access to my phone and the house phone and email. Symptoms 110bpm, memory loss, severe anhedonia, no motivation, poor sleep, loss of hobbies and interests including music. Things that have come back are appetite and feeling the cold and my muscles. Nothings gonna hurt me with my eyes shut, I can see through them, I can see through them - Years and Years 2015 Link to comment
btdt Posted December 30, 2015 Share Posted December 30, 2015 Thank you Martina! Just one wish this Christmas would be to have you all healed and happy. Much love and light to everyone. Merry Christmas. Right back at you Muddles peace WARNING THIS WILL BE LONG Had a car accident in 85 Codeine was the pain med when I was release from hosp continuous use till 89 Given PROZAC by a specialist to help with nerve pain in my leg 89-90 not sure which year Was not told a thing about it being a psych med thought it was a pain killer no info about psych side effects I went nuts had hallucinations. As I had a head injury and was diagnosed with a concussion in 85 I was sent to a head injury clinic in 1990 five years after the accident. I don't think they knew I had been on prozac I did not think it a big deal and never did finish the bottle of pills. I had tests of course lots of them. Was put into a pain clinic and given amitriptyline which stopped the withdrawal but had many side effects. But I could sleep something I had not done in a very long time the pain lessened. My mother got cancer in 94 they switched my meds to Zoloft to help deal with this pressure as I was her main care giver she died in 96. I stopped zoloft in 96 had withdrawal was put on paxil went nutty quit it ct put on resperidol quit it ct had withdrawal was put on Effexor... 2years later celexa was added 20mg then increased to 40mg huge personality change went wild. Did too fast taper off Celexa 05 as I felt unwell for a long time prior... quit Effexor 150mg ct 07 found ****** 8 months into withdrawal learned some things was banned from there in 08 have kept learning since. there is really not enough room here to put my history but I have a lot of opinions about a lot of things especially any of the drugs mentioned above. One thing I would like to add here is this tidbit ALL OPIATES INCREASE SEROTONIN it is not a huge jump to being in chronic pain to being put on an ssri/snri and opiates will affect your antidepressants and your thinking. As I do not update much I will put my quit date Nov. 17 2007 I quit Effexor cold turkey. http://survivingantidepressants.org/index.php?/topic/1096-introducing-myself-btdt/ There is a crack in everything ..That's how the light gets in Link to comment
AliG Posted December 30, 2015 Share Posted December 30, 2015 Muddles, You are a warrior ! I admire your resilience & fortitude. May the New Year bring some healing and recovery. Ali. Many SSRI's and SSNRI's over 20 years. Zoloft for 7 years followed by Effexor, Lexapro, Prozac, Cymbalta, Celexa, Pristiq, Valdoxan, Mianserin and more - on and off. No tapering. Cold turkey off Valdoxan - end of May 2014 Psych Drug - free since May 2014 . Link to comment
Muddles Posted December 31, 2015 Author Share Posted December 31, 2015 Thanks AliG. I wish everyone will see improvements in the next coming year. I will be lighting a candle tonight - for all of you who are suffering and for those who have not made it to see the up coming year. I am devestated for those and their families. I cannot celebrate....not yet. Maybe next year. I really hope so. Sending much love and healing thoughts. Thank you to everyone who took time out to support me. 2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription. Severe adverse reaction Mirtazapine prescribed - adverse reaction but told to stay on. Poop out - December 2013 15mg Currently on 13.5mg, April 12mg May 10th - 11mg June 10th - 10mg July 8th - 9mg September - 0mg Link to comment
Moderator Emeritus bubble Posted December 31, 2015 Moderator Emeritus Share Posted December 31, 2015 Thank you Muddles and lots of love and healing thoughts to you too. Thank you also for the idea of lighting a candle. I will do it... Current: 9/2022 Xanax 0.08, Lexapro 2 2020 Xanax 0.26 (down from 2 mg in 2013), Lexapro 2.85 mg (down from 5 mg 2013) Amitriptyline (tricyclic AD) and clonazepam for 3 months to treat headache in 1996 1999. - present Xanax prn up to 3 mg. 2000-2005 Prozac CT twice, 2005-2010 Zoloft CT 3 times, 2010-2013 Escitalopram 10 mg went from 2.5 to zero on 7 Aug 2013, bad crash 40 days afterreinstated to 5 mg Escitalopram 4Oct 2013 and holding liquid Xanax every 5 hours 28 Jan 2014 Xanax 1.9, 18 Apr 2015 1 mg, 25 June 2015 Lex 4.8, 6 Aug Lexapro 4.6, 1 Jan 2016 0.64 Xanax 9 month hold 24 Sept 2016 4.5 Lex, 17 Oct 4.4 Lex (Nov 0.63 Xanax, Dec 0.625 Xanax), 1 Jan 2017 4.3 Lex, 24 Jan 4.2, 5 Feb 4.1, 24 Mar 4 mg, 10 Apr 3.9 mg, May 3.85, June 3.8, July 3.75, 22 July 3.7, 15 Aug 3.65, 17 Sept 3.6, 1 Jan 2018 3.55, 19 Jan 3.5, 16 Mar 3.4, 14 Apr 3.3, 23 May 3.2, 16 June 3.15, 15 Jul 3.1, 31 Jul 3, 21 Aug 2.9 26 Sept 2.85, 14 Nov Xan 0.61, 1 Dec 0.59, 19 Dec 0.58, 4 Jan 0.565, 6 Feb 0.55, 20 Feb 0.535, 1 Mar 0.505, 10 Mar 0.475, 14 Mar 0.45, 4 Apr 0.415, 13 Apr 0.37, 21 Apr 0.33, 29 Apr 0.29, 10 May 0.27, 17 May 0.25, 28 May 0.22, 19 June 0.22, 21 Jun updose to 0.24, 24 Jun updose to 0.26 Supplements: Omega 3 + Vit E, Vit C, D, magnesium, Taurine, probiotic I'm not a medical professional. Any advice I give is based on my own experience and reading. Link to comment
WinningThrough Posted December 31, 2015 Share Posted December 31, 2015 Love you, Muddles. Thank you for lighting a candle..what a wonderful idea. I will do the same. Any I'll light a special one for you! Xxx The only way out is through. Aug 2013 - Augmentin leading to akathisia Sept-Nov 2013 - Citalopram 20mg, severe reaction, off at 5mg. Valium 4mg, prn Oct 2013 - 5 zopiclone tablets, 7.5mg End Nov 2013-end Feb 2014, Seroquel, top dose 150mg, off at 25mg End Nov 2013-early march 2014, Zoloft 100mg top dose, off at 25mg End Dec-2013-early April 2014, lorazepam 1mg prn April 3rd 2014 zoloft 5mg for a few days. 18/4/14 - zoloft, 1mg. Came off at 0.35 mg,14th June 2014 29 June 2014 - 1mg lorazepam, last ever 29 June 2014 - med free Link to comment
Muddles Posted December 31, 2015 Author Share Posted December 31, 2015 Thank you Muddles and lots of love and healing thoughts to you too. Thank you also for the idea of lighting a candle. I will do it...Hi bubble! Long time no speak! I hope you are doing ok. Love to you. 2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription. Severe adverse reaction Mirtazapine prescribed - adverse reaction but told to stay on. Poop out - December 2013 15mg Currently on 13.5mg, April 12mg May 10th - 11mg June 10th - 10mg July 8th - 9mg September - 0mg Link to comment
Muddles Posted December 31, 2015 Author Share Posted December 31, 2015 Love you, Muddles. Thank you for lighting a candle..what a wonderful idea. I will do the same. Any I'll light a special one for you! Xxx My god I don't know what I would do without you. That is so nice of you to say. I will be thinking of you - as always. Much love to you. 2008 - Doctors appointment with stress induced anxiety led to Citalopram prescription. Severe adverse reaction Mirtazapine prescribed - adverse reaction but told to stay on. Poop out - December 2013 15mg Currently on 13.5mg, April 12mg May 10th - 11mg June 10th - 10mg July 8th - 9mg September - 0mg Link to comment
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