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littlebird: tried tapering Pristiq - will try tapering Wellbutrin instead


littlebird

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  • Mentor

Log

White noise machine strikes again, no waking up to neighbor noise!!

10am - 100mg Gabapentin

12pm - 25mg Wellbutrin IR

2pm - 100mg Gabapentin

3:30pm - Feeling overwhelmed; analysis paralysis

4pm - 25mg Wellbutrin IR

6pm - 100mg Gabapentin

8pm - 25mg Wellbutrin IR

10pm - 25mg Pristiq

Trying to make it to midnight for 100mg Seroquel, so sleepy! Passed out on couch.

 

It’s so cold that it snowed up in the hills, that hardly ever happens here. Cloudy, overcast day affecting my mood. Wishing I could work outside, feeling cramped in here today! 

 

Gratitude

I’m enjoying new leaves growing on my houseplants, every day I see them emerge a little more.

 

Music!! It’s helped me immeasurably since I was small, taping songs off the radio to listen to on my lil walkman. So grateful to have access to more music than I could possibly listen to via the internet! 

 

The sun came out for a moment and my mood soared.

 

Having a productive day! Feels like the fog of the past few weeks is just starting to fade.

 

My partner is a real cutie

 

I got us some “keep up the good work” chocolates to fuel our progress. Gotta practice what I preach and treat myself sometimes. My inner child is thrilled.

 

Walked the dog and enjoyed the flowers and plants. Go nature!

Pronouns: they/them/theirs 

Started on Prozac in early 2000s to treat cPTSD, been on various cocktails ever since.

2002-2004, 2017-2022: Buspar, tapered down to 0

2016-present: 100mg Seroquel for sleep -> May 2023: 90mg -> June 2023: 81mg -> September 2023: 72mg -> switched to brand name, much too strong, down to 60mg -> October 2023: 54mg -> November 2023: 50mg -> January 2024: 45mg -> April 2024: 40.5mg

2016-Present: 100mg Wellbutrin SR -> January 2023: 75mg IR (37.5mg 2x a day) -> February 2023 (33.75mg 2x a day) -> July 2023 (30.37mg 2x a day) -> August 2023: 27.33mg 2x a day 

2018-present: 25mg Pristiq

2015-present: 600mg Gabapentin (200mg 3x a day) -> December 2022: 300mg Gabapentin (100mg 3x a day) per GP's recommendation after side effects -> March 2023: 90mg 3x a day (switched to liquid suspension) -> April 2023: 81mg 3x a day -> September 2023: bad generic, switched back to homemade liquid; too strong after bad generic, down to 70mg 3x a day, still bad. Adjusted slowly till at 60mg 3x a day, much better. Long hold till -> December 2023: 54mg, still feels too high after November Seroquel switch from brand name to generic, doc recommended 50mg which feels better -> January 2024: When Wellbutrin went down, Gabapentin started putting me to sleep, went down to 45mg, then 41mg to stay awake, so far so good -> February 2024: 36mg, still too high, 34mg -> March 2024: 31mg, STILL too high, 30mg

Supplements: Multivitamin w/magnesium, probiotics, digestive enzymes, anti-viral nitric oxide nose spray as needed

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56 minutes ago, littlebird said:

White noise machine strikes again, no waking up to neighbor noise!!

Congrats!  

 

1 hour ago, littlebird said:

I’m enjoying new leaves growing on my houseplants, every day I see them emerge a little more.

Something very satisfying about that!

 

1 hour ago, littlebird said:

Having a productive day! Feels like the fog of the past few weeks is just starting to fade.

Glad to hear things are smoothing out a little bit.  

I am not a doctor and do not offer any medical advice, only my own experience.  Consult your physician.

2011-2015 tapered off 300MG of Effexor.  Back in the Paxil Progress days.  No rebound.   

2005-2021:  450 mg Bupropion XL Daily

2021 Buporopion May 450mg/June 400mg/July 375mg/Aug 10th 360mg/

2021 Dec - 150mg IR, 3x day = 450mg Bup, Heritage manufacturer-yellow color pill. 

2022 May 3 - 3 x 150mg IR Bup, Avet brand(pharmacist said they merged with Heritage-orange color) -migraines

REINSTATED-BACK TO MY LAST STABLE DOSE/TIME RELEASE

2022 June 5 - switched back to 3 x 150mg XL one time per day= 450 mg total Bup-Apotex brand

CURRENT TAPER 2022 Aug 31 - 450MG to 412MG IR Bup//Sep. 28, 2022: 412mg to 375mg//Oct 26, 2022: 375mg to 365 mg//Nov 21, 2022: 365mg to 327mg//Dec 27, 2022: 327 mg to 290 mg//Dec 31, 2022:  290mg to 262mg//Jan 28, 2023:  262mg to 190mg//Feb. 19, 2023:  190mg to 140mg//Mar. 18, '23:  140mg to 100mg//

 

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  • Mentor
5 minutes ago, j1290 said:
1 hour ago, littlebird said:

White noise machine strikes again, no waking up to neighbor noise!!

Congrats!  

 

Such a game changer! Waking up in a much better mood.

 

5 minutes ago, j1290 said:

Something very satisfying about that!

 

Satisfying and hopeful! Growth and progress.

Pronouns: they/them/theirs 

Started on Prozac in early 2000s to treat cPTSD, been on various cocktails ever since.

2002-2004, 2017-2022: Buspar, tapered down to 0

2016-present: 100mg Seroquel for sleep -> May 2023: 90mg -> June 2023: 81mg -> September 2023: 72mg -> switched to brand name, much too strong, down to 60mg -> October 2023: 54mg -> November 2023: 50mg -> January 2024: 45mg -> April 2024: 40.5mg

2016-Present: 100mg Wellbutrin SR -> January 2023: 75mg IR (37.5mg 2x a day) -> February 2023 (33.75mg 2x a day) -> July 2023 (30.37mg 2x a day) -> August 2023: 27.33mg 2x a day 

2018-present: 25mg Pristiq

2015-present: 600mg Gabapentin (200mg 3x a day) -> December 2022: 300mg Gabapentin (100mg 3x a day) per GP's recommendation after side effects -> March 2023: 90mg 3x a day (switched to liquid suspension) -> April 2023: 81mg 3x a day -> September 2023: bad generic, switched back to homemade liquid; too strong after bad generic, down to 70mg 3x a day, still bad. Adjusted slowly till at 60mg 3x a day, much better. Long hold till -> December 2023: 54mg, still feels too high after November Seroquel switch from brand name to generic, doc recommended 50mg which feels better -> January 2024: When Wellbutrin went down, Gabapentin started putting me to sleep, went down to 45mg, then 41mg to stay awake, so far so good -> February 2024: 36mg, still too high, 34mg -> March 2024: 31mg, STILL too high, 30mg

Supplements: Multivitamin w/magnesium, probiotics, digestive enzymes, anti-viral nitric oxide nose spray as needed

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3 minutes ago, littlebird said:

Such a game changer! Waking up in a much better mood.

I leave this on 24/7 at home and in the Jungle Room at work.  Not that I've explored the subject much but for subtle effects I also like waterfalls and diffusers, and if it ever comes to it the mother of all white noise machines the household vacuum.   That noise travels though and is a real conversation starter with the neighbors.   

I am not a doctor and do not offer any medical advice, only my own experience.  Consult your physician.

2011-2015 tapered off 300MG of Effexor.  Back in the Paxil Progress days.  No rebound.   

2005-2021:  450 mg Bupropion XL Daily

2021 Buporopion May 450mg/June 400mg/July 375mg/Aug 10th 360mg/

2021 Dec - 150mg IR, 3x day = 450mg Bup, Heritage manufacturer-yellow color pill. 

2022 May 3 - 3 x 150mg IR Bup, Avet brand(pharmacist said they merged with Heritage-orange color) -migraines

REINSTATED-BACK TO MY LAST STABLE DOSE/TIME RELEASE

2022 June 5 - switched back to 3 x 150mg XL one time per day= 450 mg total Bup-Apotex brand

CURRENT TAPER 2022 Aug 31 - 450MG to 412MG IR Bup//Sep. 28, 2022: 412mg to 375mg//Oct 26, 2022: 375mg to 365 mg//Nov 21, 2022: 365mg to 327mg//Dec 27, 2022: 327 mg to 290 mg//Dec 31, 2022:  290mg to 262mg//Jan 28, 2023:  262mg to 190mg//Feb. 19, 2023:  190mg to 140mg//Mar. 18, '23:  140mg to 100mg//

 

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  • Moderator
8 hours ago, littlebird said:

Thank you @Go2zero for catching my mistake! I might've been on the road to inpatient the way that was going. Thank goodness you stepped in there.

I am glad I could be of help by seeing your mistake and glad to see how you reacted on it by adapting your dosage. So good to read that you are doing better now 🙏

1993    Anafranil (Clomipramine) for a few months. Later in 1993 Paxil for a few months 1993- 2006      No medication

2006   Effexor, Cymbalta, some Benzo’s. All for short periods. Later in 2006 Lexapro (escitalopram) 10 mg and shortly after Wellbutrin XR 150mg, against side effects Lexapro 

Since 2006 until end of 2015: Several times on and off Lexapro and Wellbutrin and several slight dosage changes. Mostly taken dosages: 5mg Lexapro and 150mg Wellbutrin

2016  Dosage change Lexapro from 5mg to 2,5 mg. Wellbutrin stayed om 150mg

November 2016 – April 2017 Down from 2,5mg to 0,6mg Lexapro (in steps) without much problems. Wellbutrin down from 150mg to 66mg. Also without much problems.

April 2017 – March 2019       Lexapro 0,6 mg        April 2017 - August 2018       Wellbutrin in small steps down from 66mg in to 37,5 mg . Quite heavy WD after each step.

March 2019 – May 2019 Lexapro down from 0,6 to 0,3mg then Prozac to 0,6 mg switch because severe discontinuation effects (may also have been from Wellbutrin..)    

Wellbutrin down from 37,5mg to 35,3mg 

October 2019        Seroquel 12,5 mg for 4 weeks because of extreme sleeping problems, then weaning off in 2 weeks       Prozac up dosage to 1,2 mg

March 2020     Wellbutrin in 2 steps down from 35,3mg to 33,3mg   Extreme withdrawal effects during 8 months. Stopped tapering Wellbutrin  until total off Prozac. 

February 2020 – November 2020   Prozac down in steps from 1,2mg to 0,57mg. 

Jan 2021  Prozac down to:  0,55> 0,53>0,51mg,   Feb 0,47mg ,  Mar 0,42mg,   Apr 0,37, longer hold because of WD symptoms July 0,36 and hold again, Sept 19 0,35, Sept 26 0,34mg, Oct 3 0,33mg  Long hold of 172 days until March 2022

January 20, 2022:  Wellbutrin from 33,3 to 32,4mg

March 22, 2022 Prozac down from 0,33mg to: 0,30mg, Apr 0,29, May 0,28, 0,27, June 0,26, 0,25, July 0,24, 0,23, 0,22, 0,21, Aug 0,20, 0,19 Sep 0,18, Oct 0,17. 0,16, 0,15, Nov 0,14  Jan 2023 0,13, 0,12, 0,11  Feb 0,10, 0,09 Mar 0,08 ,  June 0,07 , July 0,06,  0,05, Aug 0,04, 0,03, Sept 0,026, 0,024 Nov 0,022, 0,019, 0,016, 0,013 Dec 0,012, 0,011, 0,010, 0,009   Jan 2024 0,008, 0,007,  0,006,  0,005, 0,004, 0,003, 0,002, 0,001, Feb  0,0007.  0,0005,   0,0003, 0,0001,  

Feb 23, 2024:  0,00000

Wellbutrin resume tapering: Apr 2024 31,6mg, 30,8, 30,0 , May 29,1, 28,2

  

Supplements: Fish Oil (3000mg), Magnesium 100 mg, 2 drops of Lavender Oil, only when feeling extreme anxiety. 50mg of L-Theanine only when severe discontinuation effects caused by Wellbutrin

 

Please note this is NOT a medical advice. Discuss all your medical issues with a doctor who understands psychical drugs and really knows how to withdraw from them. I wish that you will find one.

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  • Mentor
8 hours ago, j1290 said:

I leave this on 24/7 at home and in the Jungle Room at work.  Not that I've explored the subject much but for subtle effects I also like waterfalls and diffusers

 

I'mma look into upping my noise game! A waterfall sounds relaxing. Also I'm so curious what your Jungle Room looks like.

 

Sleep and lack of noise pollution sure make a positive difference, appreciating them in absence today. Starting this Friday with not enough sleep and an early angry wake up from neighbor noise. Time to get a waterfall!

 

Gonna try to finesse this rough morning with self-soothing and music to recenter. Let's see how the ole mental health responds! Maybe I need a little kitchen dancing to shake off this mood, if I'm lucky I might even get a good mood going. 

Pronouns: they/them/theirs 

Started on Prozac in early 2000s to treat cPTSD, been on various cocktails ever since.

2002-2004, 2017-2022: Buspar, tapered down to 0

2016-present: 100mg Seroquel for sleep -> May 2023: 90mg -> June 2023: 81mg -> September 2023: 72mg -> switched to brand name, much too strong, down to 60mg -> October 2023: 54mg -> November 2023: 50mg -> January 2024: 45mg -> April 2024: 40.5mg

2016-Present: 100mg Wellbutrin SR -> January 2023: 75mg IR (37.5mg 2x a day) -> February 2023 (33.75mg 2x a day) -> July 2023 (30.37mg 2x a day) -> August 2023: 27.33mg 2x a day 

2018-present: 25mg Pristiq

2015-present: 600mg Gabapentin (200mg 3x a day) -> December 2022: 300mg Gabapentin (100mg 3x a day) per GP's recommendation after side effects -> March 2023: 90mg 3x a day (switched to liquid suspension) -> April 2023: 81mg 3x a day -> September 2023: bad generic, switched back to homemade liquid; too strong after bad generic, down to 70mg 3x a day, still bad. Adjusted slowly till at 60mg 3x a day, much better. Long hold till -> December 2023: 54mg, still feels too high after November Seroquel switch from brand name to generic, doc recommended 50mg which feels better -> January 2024: When Wellbutrin went down, Gabapentin started putting me to sleep, went down to 45mg, then 41mg to stay awake, so far so good -> February 2024: 36mg, still too high, 34mg -> March 2024: 31mg, STILL too high, 30mg

Supplements: Multivitamin w/magnesium, probiotics, digestive enzymes, anti-viral nitric oxide nose spray as needed

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30 minutes ago, littlebird said:

Starting this Friday with not enough sleep and an early angry wake up from neighbor noise. Time to get a waterfall!

OMG becuase I've worked 3rd shift for a minute or two I can appreciate good sleep maybe more than some.  You can get custom earplugs that are moulded to your ear.  I don't have any but they're supposed to be comfy.  I'm writing myself a note to investigate getting some.   Unfortunately there's only so much you can do if bass is coming through the walls.  As I'm hearing tons of road noise I'm thinking I need to up my game as well!

 

37 minutes ago, littlebird said:

Maybe I need a little kitchen dancing to shake off this mood

This sounds like an excellent policy in general.  

I am not a doctor and do not offer any medical advice, only my own experience.  Consult your physician.

2011-2015 tapered off 300MG of Effexor.  Back in the Paxil Progress days.  No rebound.   

2005-2021:  450 mg Bupropion XL Daily

2021 Buporopion May 450mg/June 400mg/July 375mg/Aug 10th 360mg/

2021 Dec - 150mg IR, 3x day = 450mg Bup, Heritage manufacturer-yellow color pill. 

2022 May 3 - 3 x 150mg IR Bup, Avet brand(pharmacist said they merged with Heritage-orange color) -migraines

REINSTATED-BACK TO MY LAST STABLE DOSE/TIME RELEASE

2022 June 5 - switched back to 3 x 150mg XL one time per day= 450 mg total Bup-Apotex brand

CURRENT TAPER 2022 Aug 31 - 450MG to 412MG IR Bup//Sep. 28, 2022: 412mg to 375mg//Oct 26, 2022: 375mg to 365 mg//Nov 21, 2022: 365mg to 327mg//Dec 27, 2022: 327 mg to 290 mg//Dec 31, 2022:  290mg to 262mg//Jan 28, 2023:  262mg to 190mg//Feb. 19, 2023:  190mg to 140mg//Mar. 18, '23:  140mg to 100mg//

 

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  • Mentor
8 minutes ago, j1290 said:

OMG becuase I've worked 3rd shift for a minute or two I can appreciate good sleep maybe more than some.

 

I bet!! Ooh, that must be extra tough trying to sleep when others are awake, the potential for noise is too high. Nothing turns me into a grizzly bear faster than messing with my sleep, with Bup irritability added in it's a dangerous combination. 

 

8 minutes ago, j1290 said:

Unfortunately there's only so much you can do if bass is coming through the walls.  As I'm hearing tons of road noise I'm thinking I need to up my game as well!

 

We need bedrooms that are also soundproof pods. Maybe I can look into sleeping in a recording booth...

 

9 minutes ago, j1290 said:
50 minutes ago, littlebird said:

Maybe I need a little kitchen dancing to shake off this mood

This sounds like an excellent policy in general.  

 

Worked like a charm! It started off more shadow-box than dance, but we got there in the end. Gotta remember to try shaking off moods with music and dance more often! 

Pronouns: they/them/theirs 

Started on Prozac in early 2000s to treat cPTSD, been on various cocktails ever since.

2002-2004, 2017-2022: Buspar, tapered down to 0

2016-present: 100mg Seroquel for sleep -> May 2023: 90mg -> June 2023: 81mg -> September 2023: 72mg -> switched to brand name, much too strong, down to 60mg -> October 2023: 54mg -> November 2023: 50mg -> January 2024: 45mg -> April 2024: 40.5mg

2016-Present: 100mg Wellbutrin SR -> January 2023: 75mg IR (37.5mg 2x a day) -> February 2023 (33.75mg 2x a day) -> July 2023 (30.37mg 2x a day) -> August 2023: 27.33mg 2x a day 

2018-present: 25mg Pristiq

2015-present: 600mg Gabapentin (200mg 3x a day) -> December 2022: 300mg Gabapentin (100mg 3x a day) per GP's recommendation after side effects -> March 2023: 90mg 3x a day (switched to liquid suspension) -> April 2023: 81mg 3x a day -> September 2023: bad generic, switched back to homemade liquid; too strong after bad generic, down to 70mg 3x a day, still bad. Adjusted slowly till at 60mg 3x a day, much better. Long hold till -> December 2023: 54mg, still feels too high after November Seroquel switch from brand name to generic, doc recommended 50mg which feels better -> January 2024: When Wellbutrin went down, Gabapentin started putting me to sleep, went down to 45mg, then 41mg to stay awake, so far so good -> February 2024: 36mg, still too high, 34mg -> March 2024: 31mg, STILL too high, 30mg

Supplements: Multivitamin w/magnesium, probiotics, digestive enzymes, anti-viral nitric oxide nose spray as needed

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  • Mentor

My psychiatrist is a no-show for this tele-health appt. Since it was our first appt together, I don't have his contact info. I waited weeks for this, what a let down! 

Pronouns: they/them/theirs 

Started on Prozac in early 2000s to treat cPTSD, been on various cocktails ever since.

2002-2004, 2017-2022: Buspar, tapered down to 0

2016-present: 100mg Seroquel for sleep -> May 2023: 90mg -> June 2023: 81mg -> September 2023: 72mg -> switched to brand name, much too strong, down to 60mg -> October 2023: 54mg -> November 2023: 50mg -> January 2024: 45mg -> April 2024: 40.5mg

2016-Present: 100mg Wellbutrin SR -> January 2023: 75mg IR (37.5mg 2x a day) -> February 2023 (33.75mg 2x a day) -> July 2023 (30.37mg 2x a day) -> August 2023: 27.33mg 2x a day 

2018-present: 25mg Pristiq

2015-present: 600mg Gabapentin (200mg 3x a day) -> December 2022: 300mg Gabapentin (100mg 3x a day) per GP's recommendation after side effects -> March 2023: 90mg 3x a day (switched to liquid suspension) -> April 2023: 81mg 3x a day -> September 2023: bad generic, switched back to homemade liquid; too strong after bad generic, down to 70mg 3x a day, still bad. Adjusted slowly till at 60mg 3x a day, much better. Long hold till -> December 2023: 54mg, still feels too high after November Seroquel switch from brand name to generic, doc recommended 50mg which feels better -> January 2024: When Wellbutrin went down, Gabapentin started putting me to sleep, went down to 45mg, then 41mg to stay awake, so far so good -> February 2024: 36mg, still too high, 34mg -> March 2024: 31mg, STILL too high, 30mg

Supplements: Multivitamin w/magnesium, probiotics, digestive enzymes, anti-viral nitric oxide nose spray as needed

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  • Mentor

Rant ahead!

 

Called Kaiser, the doctor cancelled the appointment 15 minutes before it was supposed to begin. That message didn't come through to me and I got an automatic link to the video call instead.

 

I waited over 7 weeks for that appointment! Trying to see when I can get in with someone else, looks like it might be another long wait. 

 

Kaiser is truly the worst healthcare I've experienced, I've had much better treatment at free clinics. If only there was a free clinic for meds! Having a little frustrated cry. 

Pronouns: they/them/theirs 

Started on Prozac in early 2000s to treat cPTSD, been on various cocktails ever since.

2002-2004, 2017-2022: Buspar, tapered down to 0

2016-present: 100mg Seroquel for sleep -> May 2023: 90mg -> June 2023: 81mg -> September 2023: 72mg -> switched to brand name, much too strong, down to 60mg -> October 2023: 54mg -> November 2023: 50mg -> January 2024: 45mg -> April 2024: 40.5mg

2016-Present: 100mg Wellbutrin SR -> January 2023: 75mg IR (37.5mg 2x a day) -> February 2023 (33.75mg 2x a day) -> July 2023 (30.37mg 2x a day) -> August 2023: 27.33mg 2x a day 

2018-present: 25mg Pristiq

2015-present: 600mg Gabapentin (200mg 3x a day) -> December 2022: 300mg Gabapentin (100mg 3x a day) per GP's recommendation after side effects -> March 2023: 90mg 3x a day (switched to liquid suspension) -> April 2023: 81mg 3x a day -> September 2023: bad generic, switched back to homemade liquid; too strong after bad generic, down to 70mg 3x a day, still bad. Adjusted slowly till at 60mg 3x a day, much better. Long hold till -> December 2023: 54mg, still feels too high after November Seroquel switch from brand name to generic, doc recommended 50mg which feels better -> January 2024: When Wellbutrin went down, Gabapentin started putting me to sleep, went down to 45mg, then 41mg to stay awake, so far so good -> February 2024: 36mg, still too high, 34mg -> March 2024: 31mg, STILL too high, 30mg

Supplements: Multivitamin w/magnesium, probiotics, digestive enzymes, anti-viral nitric oxide nose spray as needed

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4 hours ago, littlebird said:
5 hours ago, j1290 said:
5 hours ago, littlebird said:

Maybe I need a little kitchen dancing to shake off this mood

This sounds like an excellent policy in general.  

 

Worked like a charm! It started off more shadow-box than dance, but we got there in the end. Gotta remember to try shaking off moods with music and dance more often! 

This really works. When I have anxious energy I find shaking it out and moving can really help!

Age 16 (1995 - 2000) -Paroxetine
Age 21 (2000-2004) - Effexor 37.5mg
Age 24 (2004-2012) - Lexapro (70mg), Xanax minimum 2mg Xanax a day
About 32 (2012-2017?) - Every mood stabiliser under the sun (not at the same time) and minimum 2mg Xanax a day; occasional amisulpride 
About 35 (2017-current) - Lurasidone 80 mg, quickly titrated down to 40mg, Pristiq (50 mg), minimum of 2mg Xanax a day
About 41 (2020) Switched from Xanax to clonazepam and started tapering at 0.125 mg each reduction, tapered off Pristiq with a cross taper at the end, low dose of dextroamphetamine.
Age 42 (2021) Tried to taper off Lurasidone three times. Quick taper from 40mg to 0 mg over a couple of months the first time. Reinstated at 20mg. Tried twice more to taper from 20 mg to 0 mg dropping by 5 mg each reduction (about every 2 weeks).
Age 42-43 (April 2022) 20mg-18mg; May 18mg-16mg; June 16-14mg; September 14-12mg; September 12-14mg reinstated. February 2023 - hiccup with brand change, Back to Apotek brand and switch to homemade suspension.

Age 44 (August 2023 -restarted clonazepam taper). Start dose 0.375mg. 1/9/2023 - 0.365mg; 1/10/2023 - 0.324mg; 1/11/2023 - 0.264mg; 1/12/2023 - 0.25 mg (holding); 1/2/2024 - 0.232mg; 1/3/2024 - 0.221mg; 1/4/2024 - 0.205mg;

Health regimen: walks, hot/cold showers, ice baths, breathwork, mostly healthy diet, therapy...... Open to ideas! Supplements: Milk Kefir, Mag, Omega 3, CBD/THC.

 

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24 minutes ago, littlebird said:

Rant ahead!

 

Called Kaiser, the doctor cancelled the appointment 15 minutes before it was supposed to begin. That message didn't come through to me and I got an automatic link to the video call instead.

 

I waited over 7 weeks for that appointment! Trying to see when I can get in with someone else, looks like it might be another long wait. 

 

Kaiser is truly the worst healthcare I've experienced, I've had much better treatment at free clinics. If only there was a free clinic for meds! Having a little frustrated cry. 

That’s horrible. It would be very frustrating and disappointing. Very unprofessional as well. Sorry you have to deal with that

Age 16 (1995 - 2000) -Paroxetine
Age 21 (2000-2004) - Effexor 37.5mg
Age 24 (2004-2012) - Lexapro (70mg), Xanax minimum 2mg Xanax a day
About 32 (2012-2017?) - Every mood stabiliser under the sun (not at the same time) and minimum 2mg Xanax a day; occasional amisulpride 
About 35 (2017-current) - Lurasidone 80 mg, quickly titrated down to 40mg, Pristiq (50 mg), minimum of 2mg Xanax a day
About 41 (2020) Switched from Xanax to clonazepam and started tapering at 0.125 mg each reduction, tapered off Pristiq with a cross taper at the end, low dose of dextroamphetamine.
Age 42 (2021) Tried to taper off Lurasidone three times. Quick taper from 40mg to 0 mg over a couple of months the first time. Reinstated at 20mg. Tried twice more to taper from 20 mg to 0 mg dropping by 5 mg each reduction (about every 2 weeks).
Age 42-43 (April 2022) 20mg-18mg; May 18mg-16mg; June 16-14mg; September 14-12mg; September 12-14mg reinstated. February 2023 - hiccup with brand change, Back to Apotek brand and switch to homemade suspension.

Age 44 (August 2023 -restarted clonazepam taper). Start dose 0.375mg. 1/9/2023 - 0.365mg; 1/10/2023 - 0.324mg; 1/11/2023 - 0.264mg; 1/12/2023 - 0.25 mg (holding); 1/2/2024 - 0.232mg; 1/3/2024 - 0.221mg; 1/4/2024 - 0.205mg;

Health regimen: walks, hot/cold showers, ice baths, breathwork, mostly healthy diet, therapy...... Open to ideas! Supplements: Milk Kefir, Mag, Omega 3, CBD/THC.

 

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1 hour ago, littlebird said:

My psychiatrist is a no-show for this tele-health appt. Since it was our first appt together, I don't have his contact info. I waited weeks for this, what a let down! 

I’m so sorry this happened to you @littlebird. Im shocked that they didn’t get a fill-in of some kind. Psychiatrists should kinda know that their patients are likely to be fragile mentally!

 

Please accept a virtual hug from across the seas.

HISTORY

1995 - 2006: One at a time I've tried Zoloft, a MAOI for a short time, Cipramil, and Effexor for a short time (hell)

Lexapro career began 2006: 10 mg. 2014↘️tapered over months to less than 5 mg by cutting tablets and skipping doses. GP convinced me to ↗️to 10mg. 2018↗️20 mg. 2022↗️30 mg. 2021 Occasional 75 mg Lyrica for anxiety. 
Dec 2022: Trial 5 mg dextroamphetamine once a day. Began Lex taper Dec 22: 30 mg↘️20 mg (no symptoms). Jan 2023 dextroamphetamine 5mg x 3 daily. 

CURRENT

Daily: dexamfetamine 5 mg three times a day, Doxycycline 50 mg for skin (am) Supps: Fish oil. Magnesium and Turmeric, Women's 50+ multi (pm)

Occasional: Panadol/Nurofen/Meloxicam for headaches/arthritis; doxylamine for sleep

Lexapro taper 2023 16 Jan ↘️10 mg, (bad physical WDs) 27 Jan↗️15 mg 13 Feb↘️12 mg. 6 Mar↘️10 mg 20 Mar➡️crossover to liquid 31 Mar↘️8.5 mg. 24 Apr↘️7.25 mg. 17 May↘️7 mg. 31 May↘️6 mg, 6 week hold Switch to slide 10 July↘️5.8↘️5.6↘️5.4mg 7 Aug↘️5.2↘️5.1↘️5mg. Crossover to generic tablets from 4 Sept 23. Still holding at 5 mg, 13 May 2024.

 

Anything I write here is my opinion based on my experiences. It is not medical advice.

Link to comment

Oh, no! I am so sorry for you about this. Terrible treatment, especially for those who are struggling anyway. What a disappointment. Sending love, littlebird.  xo Rebecca

Prozac 10mg 1990-1999    -1999-2018 Effexor XR 75 mg capsules

-2018 Dr direct switched me from Effexor 75XR to Cymbalta 20mg XR and 20 mg Metoprolol following irregular heartbeat incident  -Late 2019 began worsening anxiety/ depression symptoms     -2020 Dr direct switched  back to 75 mg Effex XR   Symptoms worsened   -2021 Changed Dr and began therapy for GAD and worsening physical symptoms   -2022 Found this forum and began slow taper by removing beads -    6/7 - 6/10 Effexor 73.2mg  6/11-6/14  Effexor 72.9mg   nightmares, tinnitus, anxiety;  6/15- Effexor XR 72.6mg  6/16 - 6/20 Effexor XR 72.8   nausea, heart palpitations, anxiety, tinnitus 6/22-7/4 hold Effexor XR 72.9-73.1     7/5-7/11  Effexor XR 72.62  7/12 - 7/15  Effexor 72.6  bad symptoms 

7/16-7/17 Effexor XR upped to 72.9  7/18 Effexor XR 72.9  most symptoms gone  hold at 72.9 - 73.0   8/26 - 9/6  Trying to keep dosage under 73. Holding around 72.9 sometime 72.86 due to bead count  Having symptoms most days.

9/6-9/23    Holding at about 72.9-73. Still very ill. No improvement.

9/23 - 11/23  Still keeping dose around 72.9-73

11-23-Jan 14   Held until one week ago. Dropped to 72.75-72.81  terrible WD

1/14- present   Worse WD symptoms. Back to 73.10. Cannot seem to stabilize. 

2/2 - present Holding at about 73 hoping to stabilize  

3/19 - present Dropped to aprox 92.9-92.88. (vary from day to day.) Holding 

Take only Clarinex 5mg for allergies and the Effexor 73 XR. I cannot take any supplements. No caffeine, sugar, soy, gluten, dairy.

 

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  • Mentor
1 hour ago, Thorin said:

That’s horrible. It would be very frustrating and disappointing. Very unprofessional as well. Sorry you have to deal with that

 

I made a formal complaint, which was cathartic if nothing else. I think there is a CA standard of care act I could sue them under for this long wait between making appointment and receiving care, but I don't think I have the energy for all that. Got in late next month, at least it's not another 7 weeks.

 

I'm trying to remind myself their doctors have been terrible, the advice I got from people on here was a million times better anyway, and it's not a loss... but I'm still surprisingly upset. 

 

Chocolate time.

 

8 minutes ago, Fifree said:

Im shocked that they didn’t get a fill-in of some kind. Psychiatrists should kinda know that their patients are likely to be fragile mentally!

 

This is par for the course with this company, unfortunately. They've been sued and had multiple strikes of mental healthcare workers asking them to hire more staff, and they just keep on doing what they're doing. Too big to fail or be affected by lawsuits and union strikes!

 

10 minutes ago, Fifree said:

Please accept a virtual hug from across the seas.

 

So happily, thank you!! Sending a hug across the globe back.

 

4 minutes ago, rmce72a said:

Oh, no! I am so sorry for you about this. Terrible treatment, especially for those who are struggling anyway. What a disappointment. Sending love, littlebird.  xo Rebecca

 

Thank you!! I appreciate that. I think I needed to have my feelings validated, I'd been telling myself to let it go and move on. Maybe I need to sit with these feelings, otherwise they're likely to keep popping up.

 

My partner and I are considering switching insurance providers (we have a mid-year opportunity since we got married recently), but the other option has a $3,000 deductible and only covers 80% of costs after that, so an emergency room visit could put us in serious debt. American healthcare, why are you like this?

 

Thank you, everyone!! This helped me feel better about having strong feelings about a missed appointment. I think it might be pinging some childhood neglect stuff, the way my eyes keep filling with tears. I feel like a lil kid, which is usually a sign that something got triggered.

Pronouns: they/them/theirs 

Started on Prozac in early 2000s to treat cPTSD, been on various cocktails ever since.

2002-2004, 2017-2022: Buspar, tapered down to 0

2016-present: 100mg Seroquel for sleep -> May 2023: 90mg -> June 2023: 81mg -> September 2023: 72mg -> switched to brand name, much too strong, down to 60mg -> October 2023: 54mg -> November 2023: 50mg -> January 2024: 45mg -> April 2024: 40.5mg

2016-Present: 100mg Wellbutrin SR -> January 2023: 75mg IR (37.5mg 2x a day) -> February 2023 (33.75mg 2x a day) -> July 2023 (30.37mg 2x a day) -> August 2023: 27.33mg 2x a day 

2018-present: 25mg Pristiq

2015-present: 600mg Gabapentin (200mg 3x a day) -> December 2022: 300mg Gabapentin (100mg 3x a day) per GP's recommendation after side effects -> March 2023: 90mg 3x a day (switched to liquid suspension) -> April 2023: 81mg 3x a day -> September 2023: bad generic, switched back to homemade liquid; too strong after bad generic, down to 70mg 3x a day, still bad. Adjusted slowly till at 60mg 3x a day, much better. Long hold till -> December 2023: 54mg, still feels too high after November Seroquel switch from brand name to generic, doc recommended 50mg which feels better -> January 2024: When Wellbutrin went down, Gabapentin started putting me to sleep, went down to 45mg, then 41mg to stay awake, so far so good -> February 2024: 36mg, still too high, 34mg -> March 2024: 31mg, STILL too high, 30mg

Supplements: Multivitamin w/magnesium, probiotics, digestive enzymes, anti-viral nitric oxide nose spray as needed

Link to comment
5 hours ago, littlebird said:

 

Called Kaiser, the doctor cancelled the appointment

 

5 hours ago, littlebird said:

I waited over 7 weeks for that appointment!

I see nothing has improved at Kaiser.  That's unsurprisingly sucky.   

 

10 hours ago, littlebird said:

We need bedrooms that are also soundproof pods. Maybe I can look into sleeping in a recording booth...

If I ever build a house (hah) I'll have to look into filling the walls with sand or whatever they do for those things.  

 

3 hours ago, littlebird said:

I think it might be pinging some childhood neglect stuff

Brutal.   I hear that.   Hits so many notes for me.  I'm really sorry that happened to you, Littlebird.  Both then and now.   It wasn't fair. 

If I hadn't been doing a lot of EMDR I'd be a wreck just reading this.  

I am not a doctor and do not offer any medical advice, only my own experience.  Consult your physician.

2011-2015 tapered off 300MG of Effexor.  Back in the Paxil Progress days.  No rebound.   

2005-2021:  450 mg Bupropion XL Daily

2021 Buporopion May 450mg/June 400mg/July 375mg/Aug 10th 360mg/

2021 Dec - 150mg IR, 3x day = 450mg Bup, Heritage manufacturer-yellow color pill. 

2022 May 3 - 3 x 150mg IR Bup, Avet brand(pharmacist said they merged with Heritage-orange color) -migraines

REINSTATED-BACK TO MY LAST STABLE DOSE/TIME RELEASE

2022 June 5 - switched back to 3 x 150mg XL one time per day= 450 mg total Bup-Apotex brand

CURRENT TAPER 2022 Aug 31 - 450MG to 412MG IR Bup//Sep. 28, 2022: 412mg to 375mg//Oct 26, 2022: 375mg to 365 mg//Nov 21, 2022: 365mg to 327mg//Dec 27, 2022: 327 mg to 290 mg//Dec 31, 2022:  290mg to 262mg//Jan 28, 2023:  262mg to 190mg//Feb. 19, 2023:  190mg to 140mg//Mar. 18, '23:  140mg to 100mg//

 

Link to comment
  • Mentor
31 minutes ago, j1290 said:
4 hours ago, littlebird said:

I think it might be pinging some childhood neglect stuff

Brutal.   I hear that.   Hits so many notes for me.  I'm really sorry that happened to you, Littlebird.  Both then and now.   It wasn't fair. 

If I hadn't been doing a lot of EMDR I'd be a wreck just reading this.  

 

Thanks, friend. I'm glad you have some EMDER re-categorizing memories to less painful places and things aren't as triggering as they were before. Developmental trauma is a trip and a half. It's isolating too, helps to talk to people who have been there. Thanks again.

 

33 minutes ago, j1290 said:
11 hours ago, littlebird said:

We need bedrooms that are also soundproof pods. Maybe I can look into sleeping in a recording booth...

If I ever build a house (hah) I'll have to look into filling the walls with sand or whatever they do for those things.  

 

Yes!! I want my bedroom (at least) to be a soundproof room with a "do not disturb" sign on the knob. The library too, a whole room for books with the coziest reading chair imaginable and great light for plants, since we're building dream houses here. Maybe a fireplace for crackling ambiance. Woo, I changed my whole mood with some dream-building. And (way too much) chocolate, I think I need more coping skills than treats and work.

Pronouns: they/them/theirs 

Started on Prozac in early 2000s to treat cPTSD, been on various cocktails ever since.

2002-2004, 2017-2022: Buspar, tapered down to 0

2016-present: 100mg Seroquel for sleep -> May 2023: 90mg -> June 2023: 81mg -> September 2023: 72mg -> switched to brand name, much too strong, down to 60mg -> October 2023: 54mg -> November 2023: 50mg -> January 2024: 45mg -> April 2024: 40.5mg

2016-Present: 100mg Wellbutrin SR -> January 2023: 75mg IR (37.5mg 2x a day) -> February 2023 (33.75mg 2x a day) -> July 2023 (30.37mg 2x a day) -> August 2023: 27.33mg 2x a day 

2018-present: 25mg Pristiq

2015-present: 600mg Gabapentin (200mg 3x a day) -> December 2022: 300mg Gabapentin (100mg 3x a day) per GP's recommendation after side effects -> March 2023: 90mg 3x a day (switched to liquid suspension) -> April 2023: 81mg 3x a day -> September 2023: bad generic, switched back to homemade liquid; too strong after bad generic, down to 70mg 3x a day, still bad. Adjusted slowly till at 60mg 3x a day, much better. Long hold till -> December 2023: 54mg, still feels too high after November Seroquel switch from brand name to generic, doc recommended 50mg which feels better -> January 2024: When Wellbutrin went down, Gabapentin started putting me to sleep, went down to 45mg, then 41mg to stay awake, so far so good -> February 2024: 36mg, still too high, 34mg -> March 2024: 31mg, STILL too high, 30mg

Supplements: Multivitamin w/magnesium, probiotics, digestive enzymes, anti-viral nitric oxide nose spray as needed

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  • Mentor

Okie dokie, some days you have to surf bigger waves than others! Unexpectedly hard day, but I coped. Part of me wanted to have a drink after a long day week month.

 

Funny how a part of me very much just wants an easy way to feel better! Did not have a beer, as much as I'd like to have been able to crack one like a normal person. I think I need to have sparkling water in the house, that might feel like a decent replacement.

 

Feeling like I've gone a couple rounds in the ring of life today, and took some hits. All I want to do is call it a night and hit the reset button by falling asleep, but I'm on this damn med schedule and I'd have to skip Pristiq to take Seroquel since they interact OR just stay up till midnight. 

 

I'm having a bit of a complain, and I guess that's what I need. Sometimes life is hard, and we just have to pick ourselves up and keep putting one foot in front of the other to get to a less hard part of life. Gosh, we're a persistent and patient bunch!

Pronouns: they/them/theirs 

Started on Prozac in early 2000s to treat cPTSD, been on various cocktails ever since.

2002-2004, 2017-2022: Buspar, tapered down to 0

2016-present: 100mg Seroquel for sleep -> May 2023: 90mg -> June 2023: 81mg -> September 2023: 72mg -> switched to brand name, much too strong, down to 60mg -> October 2023: 54mg -> November 2023: 50mg -> January 2024: 45mg -> April 2024: 40.5mg

2016-Present: 100mg Wellbutrin SR -> January 2023: 75mg IR (37.5mg 2x a day) -> February 2023 (33.75mg 2x a day) -> July 2023 (30.37mg 2x a day) -> August 2023: 27.33mg 2x a day 

2018-present: 25mg Pristiq

2015-present: 600mg Gabapentin (200mg 3x a day) -> December 2022: 300mg Gabapentin (100mg 3x a day) per GP's recommendation after side effects -> March 2023: 90mg 3x a day (switched to liquid suspension) -> April 2023: 81mg 3x a day -> September 2023: bad generic, switched back to homemade liquid; too strong after bad generic, down to 70mg 3x a day, still bad. Adjusted slowly till at 60mg 3x a day, much better. Long hold till -> December 2023: 54mg, still feels too high after November Seroquel switch from brand name to generic, doc recommended 50mg which feels better -> January 2024: When Wellbutrin went down, Gabapentin started putting me to sleep, went down to 45mg, then 41mg to stay awake, so far so good -> February 2024: 36mg, still too high, 34mg -> March 2024: 31mg, STILL too high, 30mg

Supplements: Multivitamin w/magnesium, probiotics, digestive enzymes, anti-viral nitric oxide nose spray as needed

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  • Mentor

Log

Didn’t get enough sleep, grumpy!

10am - 100mg Gabapentin

12pm - 25mg Wellbutrin IR

2pm - 100mg Gabapentin

4pm - 25mg Wellbutrin IR

6pm - 100 mg Gabapentin

8pm - 25mg Wellbutrin IR

10pm - 25mg Pristiq

It's hard to make it till midnight for 100mg Seroquel, I'm ready to throw in the towel on today.

 

This schedule is a drag!! I’m so bummed I messed up what I had going with WellyB SR. Ah well. 

 

A perfect storm of big life stress, freezing winds, and lack of sleep have me in the first bad fibromyalgia flare I've had in a minute. Hoo boy, it's gonna be a night for a fragment of a muscle relaxant and maybe some indica tincture or something. Definitely pre-heating bed too! I want to move to the tropics, plz.

 

Gratitude

Went to the barber today, and was complimented on how thick my hair is, so it’s not thinning as much as my hair-loss anxiety was telling me. Looking sharp too! Feels good to have a fresh cut.

 

Escaped a parking ticket!

 

Partner is baking another loaf of bread! The house is the warmest it’s been all day, and it smells so good.

 

New episode of Drag Race tonight. The harder the week, the more I look forward to that Friday treat. 

 

Despite anorexia being loud after some chocolate gluttony, I made a healthy dinner tonight and ate a good amount. Proud of myself for pushing through!

Pronouns: they/them/theirs 

Started on Prozac in early 2000s to treat cPTSD, been on various cocktails ever since.

2002-2004, 2017-2022: Buspar, tapered down to 0

2016-present: 100mg Seroquel for sleep -> May 2023: 90mg -> June 2023: 81mg -> September 2023: 72mg -> switched to brand name, much too strong, down to 60mg -> October 2023: 54mg -> November 2023: 50mg -> January 2024: 45mg -> April 2024: 40.5mg

2016-Present: 100mg Wellbutrin SR -> January 2023: 75mg IR (37.5mg 2x a day) -> February 2023 (33.75mg 2x a day) -> July 2023 (30.37mg 2x a day) -> August 2023: 27.33mg 2x a day 

2018-present: 25mg Pristiq

2015-present: 600mg Gabapentin (200mg 3x a day) -> December 2022: 300mg Gabapentin (100mg 3x a day) per GP's recommendation after side effects -> March 2023: 90mg 3x a day (switched to liquid suspension) -> April 2023: 81mg 3x a day -> September 2023: bad generic, switched back to homemade liquid; too strong after bad generic, down to 70mg 3x a day, still bad. Adjusted slowly till at 60mg 3x a day, much better. Long hold till -> December 2023: 54mg, still feels too high after November Seroquel switch from brand name to generic, doc recommended 50mg which feels better -> January 2024: When Wellbutrin went down, Gabapentin started putting me to sleep, went down to 45mg, then 41mg to stay awake, so far so good -> February 2024: 36mg, still too high, 34mg -> March 2024: 31mg, STILL too high, 30mg

Supplements: Multivitamin w/magnesium, probiotics, digestive enzymes, anti-viral nitric oxide nose spray as needed

Link to comment
6 hours ago, littlebird said:

Went to the barber today, and was complimented on how thick my hair is, so it’s not thinning as much as my hair-loss anxiety was telling me.

haha you know what I'd give to hear that compliment?!?  That's worth a million bucks.  Glad to hear it!

 

6 hours ago, littlebird said:

Escaped a parking ticket!

Wow!  Nothing like the feeling of getting let off the hook.   

 

7 hours ago, littlebird said:

All I want to do is call it a night and hit the reset button by falling asleep, but I'm on this damn med schedule and I'd have to skip Pristiq to take Seroquel since they interact OR just stay up till midnight. 

How are you keeping up with that schedule these days?  Every 2 hours looks at least predictable, but yeah I hear you I wound up adjusting because I couldn't do the midnight pill either.   Too easy to fall asleep and forget.  

 

6 hours ago, littlebird said:

Proud of myself for pushing through!

Yay for healthy dinners and good self care!   

I am not a doctor and do not offer any medical advice, only my own experience.  Consult your physician.

2011-2015 tapered off 300MG of Effexor.  Back in the Paxil Progress days.  No rebound.   

2005-2021:  450 mg Bupropion XL Daily

2021 Buporopion May 450mg/June 400mg/July 375mg/Aug 10th 360mg/

2021 Dec - 150mg IR, 3x day = 450mg Bup, Heritage manufacturer-yellow color pill. 

2022 May 3 - 3 x 150mg IR Bup, Avet brand(pharmacist said they merged with Heritage-orange color) -migraines

REINSTATED-BACK TO MY LAST STABLE DOSE/TIME RELEASE

2022 June 5 - switched back to 3 x 150mg XL one time per day= 450 mg total Bup-Apotex brand

CURRENT TAPER 2022 Aug 31 - 450MG to 412MG IR Bup//Sep. 28, 2022: 412mg to 375mg//Oct 26, 2022: 375mg to 365 mg//Nov 21, 2022: 365mg to 327mg//Dec 27, 2022: 327 mg to 290 mg//Dec 31, 2022:  290mg to 262mg//Jan 28, 2023:  262mg to 190mg//Feb. 19, 2023:  190mg to 140mg//Mar. 18, '23:  140mg to 100mg//

 

Link to comment
Just now, j1290 said:

it’s not thinning as much as my hair-loss anxiety was telling me.

One of my daughters is always worrying about her hair being thin. She actually has hair like Kate Middleton. We call it « hair dysmorphia » at our place. 

HISTORY

1995 - 2006: One at a time I've tried Zoloft, a MAOI for a short time, Cipramil, and Effexor for a short time (hell)

Lexapro career began 2006: 10 mg. 2014↘️tapered over months to less than 5 mg by cutting tablets and skipping doses. GP convinced me to ↗️to 10mg. 2018↗️20 mg. 2022↗️30 mg. 2021 Occasional 75 mg Lyrica for anxiety. 
Dec 2022: Trial 5 mg dextroamphetamine once a day. Began Lex taper Dec 22: 30 mg↘️20 mg (no symptoms). Jan 2023 dextroamphetamine 5mg x 3 daily. 

CURRENT

Daily: dexamfetamine 5 mg three times a day, Doxycycline 50 mg for skin (am) Supps: Fish oil. Magnesium and Turmeric, Women's 50+ multi (pm)

Occasional: Panadol/Nurofen/Meloxicam for headaches/arthritis; doxylamine for sleep

Lexapro taper 2023 16 Jan ↘️10 mg, (bad physical WDs) 27 Jan↗️15 mg 13 Feb↘️12 mg. 6 Mar↘️10 mg 20 Mar➡️crossover to liquid 31 Mar↘️8.5 mg. 24 Apr↘️7.25 mg. 17 May↘️7 mg. 31 May↘️6 mg, 6 week hold Switch to slide 10 July↘️5.8↘️5.6↘️5.4mg 7 Aug↘️5.2↘️5.1↘️5mg. Crossover to generic tablets from 4 Sept 23. Still holding at 5 mg, 13 May 2024.

 

Anything I write here is my opinion based on my experiences. It is not medical advice.

Link to comment
  • Mentor
4 hours ago, j1290 said:
11 hours ago, littlebird said:

Went to the barber today, and was complimented on how thick my hair is, so it’s not thinning as much as my hair-loss anxiety was telling me.

haha you know what I'd give to hear that compliment?!?  That's worth a million bucks.  Glad to hear it!

 

I almost cried with relief. I said I'd been worried about thinning, and was directed to look at all the hair on the floor around me needing to be swept up. It is thinner on top than it was, but I have some extra to mask it. The thinning slowed down after a couple days of big hair loss. Started taking herbs to help, not sure if it's that or body getting used to the higher dose.

 

4 hours ago, Fifree said:
4 hours ago, j1290 said:

t’s not thinning as much as my hair-loss anxiety was telling me.

One of my daughters is always worrying about her hair being thin. She actually has hair like Kate Middleton. We call it « hair dysmorphia » at our place. 

 

This tracks!! I have body dysmorphia, so why not hair dysmorphia too? Realized when my hands were covered in lost hairs in the shower, my imagination went straight to imagining a bald spot on top of my head. I need to pull out a mirror and check! I definitely lost a lot of hair when I upped the dose, but it doesn't seem to be as bad as my dysmorphia is telling me. Whew...

Pronouns: they/them/theirs 

Started on Prozac in early 2000s to treat cPTSD, been on various cocktails ever since.

2002-2004, 2017-2022: Buspar, tapered down to 0

2016-present: 100mg Seroquel for sleep -> May 2023: 90mg -> June 2023: 81mg -> September 2023: 72mg -> switched to brand name, much too strong, down to 60mg -> October 2023: 54mg -> November 2023: 50mg -> January 2024: 45mg -> April 2024: 40.5mg

2016-Present: 100mg Wellbutrin SR -> January 2023: 75mg IR (37.5mg 2x a day) -> February 2023 (33.75mg 2x a day) -> July 2023 (30.37mg 2x a day) -> August 2023: 27.33mg 2x a day 

2018-present: 25mg Pristiq

2015-present: 600mg Gabapentin (200mg 3x a day) -> December 2022: 300mg Gabapentin (100mg 3x a day) per GP's recommendation after side effects -> March 2023: 90mg 3x a day (switched to liquid suspension) -> April 2023: 81mg 3x a day -> September 2023: bad generic, switched back to homemade liquid; too strong after bad generic, down to 70mg 3x a day, still bad. Adjusted slowly till at 60mg 3x a day, much better. Long hold till -> December 2023: 54mg, still feels too high after November Seroquel switch from brand name to generic, doc recommended 50mg which feels better -> January 2024: When Wellbutrin went down, Gabapentin started putting me to sleep, went down to 45mg, then 41mg to stay awake, so far so good -> February 2024: 36mg, still too high, 34mg -> March 2024: 31mg, STILL too high, 30mg

Supplements: Multivitamin w/magnesium, probiotics, digestive enzymes, anti-viral nitric oxide nose spray as needed

Link to comment
  • Mentor

log

10am - 100mg Gabapentin

12pm - 25mg Wellbutrin IR

2pm - 100mg Gabapentin

4pm - 25mg Wellbutrin IR

6pm - 100mg Gabapentin

8pm - 25mg Wellbutrin IR

10pm - 25mg Pristiq

12am - 100mg Seroquel

 

I wish more people wore masks. It’s such an easy way to prevent the spread of disease! Being immunocompromised in a pandemic feels lonely sometimes.

 

Gratitude

The sunshine is so nice!!

 

Got out and about with a friend, and it was great to hang out. We’re social creatures after all!

 

The soup my partner made is so good, their best yet. It’s been so nice on these cold days to have a hot bowl of soup. Their bread is good too!

 

The more I push myself to do things, the better I feel. Depression is such a force of “do nothing, stay home,” but when I overcome that I feel better.

 

My dog is so cute, we had a little cuddle tonight.

Pronouns: they/them/theirs 

Started on Prozac in early 2000s to treat cPTSD, been on various cocktails ever since.

2002-2004, 2017-2022: Buspar, tapered down to 0

2016-present: 100mg Seroquel for sleep -> May 2023: 90mg -> June 2023: 81mg -> September 2023: 72mg -> switched to brand name, much too strong, down to 60mg -> October 2023: 54mg -> November 2023: 50mg -> January 2024: 45mg -> April 2024: 40.5mg

2016-Present: 100mg Wellbutrin SR -> January 2023: 75mg IR (37.5mg 2x a day) -> February 2023 (33.75mg 2x a day) -> July 2023 (30.37mg 2x a day) -> August 2023: 27.33mg 2x a day 

2018-present: 25mg Pristiq

2015-present: 600mg Gabapentin (200mg 3x a day) -> December 2022: 300mg Gabapentin (100mg 3x a day) per GP's recommendation after side effects -> March 2023: 90mg 3x a day (switched to liquid suspension) -> April 2023: 81mg 3x a day -> September 2023: bad generic, switched back to homemade liquid; too strong after bad generic, down to 70mg 3x a day, still bad. Adjusted slowly till at 60mg 3x a day, much better. Long hold till -> December 2023: 54mg, still feels too high after November Seroquel switch from brand name to generic, doc recommended 50mg which feels better -> January 2024: When Wellbutrin went down, Gabapentin started putting me to sleep, went down to 45mg, then 41mg to stay awake, so far so good -> February 2024: 36mg, still too high, 34mg -> March 2024: 31mg, STILL too high, 30mg

Supplements: Multivitamin w/magnesium, probiotics, digestive enzymes, anti-viral nitric oxide nose spray as needed

Link to comment
48 minutes ago, littlebird said:

The soup my partner made is so good, their best yet. It’s been so nice on these cold days to have a hot bowl of soup. Their bread is good too!

A feast!   Sounds perfect for this weather.  Very cozy. 

 

48 minutes ago, littlebird said:

The more I push myself to do things, the better I feel. Depression is such a force of “do nothing, stay home,” but when I overcome that I feel better.

haha well said as always.  That's pretty funny that's exactly how it feels.   Great to see you posting a nice day and sharing some of that sunlight with us.   

I am not a doctor and do not offer any medical advice, only my own experience.  Consult your physician.

2011-2015 tapered off 300MG of Effexor.  Back in the Paxil Progress days.  No rebound.   

2005-2021:  450 mg Bupropion XL Daily

2021 Buporopion May 450mg/June 400mg/July 375mg/Aug 10th 360mg/

2021 Dec - 150mg IR, 3x day = 450mg Bup, Heritage manufacturer-yellow color pill. 

2022 May 3 - 3 x 150mg IR Bup, Avet brand(pharmacist said they merged with Heritage-orange color) -migraines

REINSTATED-BACK TO MY LAST STABLE DOSE/TIME RELEASE

2022 June 5 - switched back to 3 x 150mg XL one time per day= 450 mg total Bup-Apotex brand

CURRENT TAPER 2022 Aug 31 - 450MG to 412MG IR Bup//Sep. 28, 2022: 412mg to 375mg//Oct 26, 2022: 375mg to 365 mg//Nov 21, 2022: 365mg to 327mg//Dec 27, 2022: 327 mg to 290 mg//Dec 31, 2022:  290mg to 262mg//Jan 28, 2023:  262mg to 190mg//Feb. 19, 2023:  190mg to 140mg//Mar. 18, '23:  140mg to 100mg//

 

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  • Mentor

Normally, if I slept late on a Sunday, I'd be glad I got extra rest. Woke up at 11 today, and my first thought was, "****, my schedule!!" 

 

I either need to stay up to 1am taking everything an hour late, double up on a dose, take something too close to something else, or skip a dose. I'm leaning towards taking everything else on time, and letting the Gabapentin overlap a little with the first WellyB.

 

Not such a relaxing way to start the morning, although my body definitely needed the extra sleep. Been feeling under the weather lately, not sure if I'm fighting something off or it's emotional (or all of the above and then some). 

Pronouns: they/them/theirs 

Started on Prozac in early 2000s to treat cPTSD, been on various cocktails ever since.

2002-2004, 2017-2022: Buspar, tapered down to 0

2016-present: 100mg Seroquel for sleep -> May 2023: 90mg -> June 2023: 81mg -> September 2023: 72mg -> switched to brand name, much too strong, down to 60mg -> October 2023: 54mg -> November 2023: 50mg -> January 2024: 45mg -> April 2024: 40.5mg

2016-Present: 100mg Wellbutrin SR -> January 2023: 75mg IR (37.5mg 2x a day) -> February 2023 (33.75mg 2x a day) -> July 2023 (30.37mg 2x a day) -> August 2023: 27.33mg 2x a day 

2018-present: 25mg Pristiq

2015-present: 600mg Gabapentin (200mg 3x a day) -> December 2022: 300mg Gabapentin (100mg 3x a day) per GP's recommendation after side effects -> March 2023: 90mg 3x a day (switched to liquid suspension) -> April 2023: 81mg 3x a day -> September 2023: bad generic, switched back to homemade liquid; too strong after bad generic, down to 70mg 3x a day, still bad. Adjusted slowly till at 60mg 3x a day, much better. Long hold till -> December 2023: 54mg, still feels too high after November Seroquel switch from brand name to generic, doc recommended 50mg which feels better -> January 2024: When Wellbutrin went down, Gabapentin started putting me to sleep, went down to 45mg, then 41mg to stay awake, so far so good -> February 2024: 36mg, still too high, 34mg -> March 2024: 31mg, STILL too high, 30mg

Supplements: Multivitamin w/magnesium, probiotics, digestive enzymes, anti-viral nitric oxide nose spray as needed

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  • Moderator

 

 

FYI  Just made this video. Hope this helps.

1993    Anafranil (Clomipramine) for a few months. Later in 1993 Paxil for a few months 1993- 2006      No medication

2006   Effexor, Cymbalta, some Benzo’s. All for short periods. Later in 2006 Lexapro (escitalopram) 10 mg and shortly after Wellbutrin XR 150mg, against side effects Lexapro 

Since 2006 until end of 2015: Several times on and off Lexapro and Wellbutrin and several slight dosage changes. Mostly taken dosages: 5mg Lexapro and 150mg Wellbutrin

2016  Dosage change Lexapro from 5mg to 2,5 mg. Wellbutrin stayed om 150mg

November 2016 – April 2017 Down from 2,5mg to 0,6mg Lexapro (in steps) without much problems. Wellbutrin down from 150mg to 66mg. Also without much problems.

April 2017 – March 2019       Lexapro 0,6 mg        April 2017 - August 2018       Wellbutrin in small steps down from 66mg in to 37,5 mg . Quite heavy WD after each step.

March 2019 – May 2019 Lexapro down from 0,6 to 0,3mg then Prozac to 0,6 mg switch because severe discontinuation effects (may also have been from Wellbutrin..)    

Wellbutrin down from 37,5mg to 35,3mg 

October 2019        Seroquel 12,5 mg for 4 weeks because of extreme sleeping problems, then weaning off in 2 weeks       Prozac up dosage to 1,2 mg

March 2020     Wellbutrin in 2 steps down from 35,3mg to 33,3mg   Extreme withdrawal effects during 8 months. Stopped tapering Wellbutrin  until total off Prozac. 

February 2020 – November 2020   Prozac down in steps from 1,2mg to 0,57mg. 

Jan 2021  Prozac down to:  0,55> 0,53>0,51mg,   Feb 0,47mg ,  Mar 0,42mg,   Apr 0,37, longer hold because of WD symptoms July 0,36 and hold again, Sept 19 0,35, Sept 26 0,34mg, Oct 3 0,33mg  Long hold of 172 days until March 2022

January 20, 2022:  Wellbutrin from 33,3 to 32,4mg

March 22, 2022 Prozac down from 0,33mg to: 0,30mg, Apr 0,29, May 0,28, 0,27, June 0,26, 0,25, July 0,24, 0,23, 0,22, 0,21, Aug 0,20, 0,19 Sep 0,18, Oct 0,17. 0,16, 0,15, Nov 0,14  Jan 2023 0,13, 0,12, 0,11  Feb 0,10, 0,09 Mar 0,08 ,  June 0,07 , July 0,06,  0,05, Aug 0,04, 0,03, Sept 0,026, 0,024 Nov 0,022, 0,019, 0,016, 0,013 Dec 0,012, 0,011, 0,010, 0,009   Jan 2024 0,008, 0,007,  0,006,  0,005, 0,004, 0,003, 0,002, 0,001, Feb  0,0007.  0,0005,   0,0003, 0,0001,  

Feb 23, 2024:  0,00000

Wellbutrin resume tapering: Apr 2024 31,6mg, 30,8, 30,0 , May 29,1, 28,2

  

Supplements: Fish Oil (3000mg), Magnesium 100 mg, 2 drops of Lavender Oil, only when feeling extreme anxiety. 50mg of L-Theanine only when severe discontinuation effects caused by Wellbutrin

 

Please note this is NOT a medical advice. Discuss all your medical issues with a doctor who understands psychical drugs and really knows how to withdraw from them. I wish that you will find one.

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  • Mentor
29 minutes ago, Go2zero said:

FYI  Just made this video. Hope this helps.

 

This is great, thank you!!! I appreciate you taking the time to do this. Very helpful!

Pronouns: they/them/theirs 

Started on Prozac in early 2000s to treat cPTSD, been on various cocktails ever since.

2002-2004, 2017-2022: Buspar, tapered down to 0

2016-present: 100mg Seroquel for sleep -> May 2023: 90mg -> June 2023: 81mg -> September 2023: 72mg -> switched to brand name, much too strong, down to 60mg -> October 2023: 54mg -> November 2023: 50mg -> January 2024: 45mg -> April 2024: 40.5mg

2016-Present: 100mg Wellbutrin SR -> January 2023: 75mg IR (37.5mg 2x a day) -> February 2023 (33.75mg 2x a day) -> July 2023 (30.37mg 2x a day) -> August 2023: 27.33mg 2x a day 

2018-present: 25mg Pristiq

2015-present: 600mg Gabapentin (200mg 3x a day) -> December 2022: 300mg Gabapentin (100mg 3x a day) per GP's recommendation after side effects -> March 2023: 90mg 3x a day (switched to liquid suspension) -> April 2023: 81mg 3x a day -> September 2023: bad generic, switched back to homemade liquid; too strong after bad generic, down to 70mg 3x a day, still bad. Adjusted slowly till at 60mg 3x a day, much better. Long hold till -> December 2023: 54mg, still feels too high after November Seroquel switch from brand name to generic, doc recommended 50mg which feels better -> January 2024: When Wellbutrin went down, Gabapentin started putting me to sleep, went down to 45mg, then 41mg to stay awake, so far so good -> February 2024: 36mg, still too high, 34mg -> March 2024: 31mg, STILL too high, 30mg

Supplements: Multivitamin w/magnesium, probiotics, digestive enzymes, anti-viral nitric oxide nose spray as needed

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  • Mentor

Log

11am - 100mg Gabapentin (slept late)

12pm - 25mg Wellbutrin IR

2pm - 100mg Gabapentin

Fell asleep, unusual for me to nap, slept 2 hours

6pm - 100mg Gabapentin + missed 25mg Wellbutrin

8pm - 15mg Wellbutrin - felt too amped up to take full dose again so soon

10pm - 25mg Pristiq

Midnight 100 mg Seroquel incoming!

 

Today was a tough day! Twice, in the morning and after an unexpected nap, I woke up in a panic saying, “What time is it? ****! My med schedule!!”

 

Taking this many pills a day is really a lot. I have some travel coming up next month, and I don’t know how I’m going to handle it.

 

Gratitude

I made dinner despite depression telling me, “Be lazy, have leftovers again.” Healthy, lots of veg, and pushed through anorexia. Felt pretty proud of myself, and it turned out pretty well.

 

On these cold nights, feeling especially grateful to have a home and a warm bed.

 

Despite sleeping late and taking a nap messing up my schedule, it does feel like my body majorly needed the sleep. Glad I got some rest!

 

My partner got our dog an especially big bone, and it’s pretty funny to see this lil dog parading around proudly with a bone as long as her torso.

 

Glad I got out and saw a friend this weekend. It’s good to mix it up!

 

My haircut is looking pretty slick, glad I did that.

 

I have an upcoming costume party; it’s been fun to think about outfits for my partner and I. 

 

Feeling really grateful for my partner. Glad we found each other and stuck together!

Pronouns: they/them/theirs 

Started on Prozac in early 2000s to treat cPTSD, been on various cocktails ever since.

2002-2004, 2017-2022: Buspar, tapered down to 0

2016-present: 100mg Seroquel for sleep -> May 2023: 90mg -> June 2023: 81mg -> September 2023: 72mg -> switched to brand name, much too strong, down to 60mg -> October 2023: 54mg -> November 2023: 50mg -> January 2024: 45mg -> April 2024: 40.5mg

2016-Present: 100mg Wellbutrin SR -> January 2023: 75mg IR (37.5mg 2x a day) -> February 2023 (33.75mg 2x a day) -> July 2023 (30.37mg 2x a day) -> August 2023: 27.33mg 2x a day 

2018-present: 25mg Pristiq

2015-present: 600mg Gabapentin (200mg 3x a day) -> December 2022: 300mg Gabapentin (100mg 3x a day) per GP's recommendation after side effects -> March 2023: 90mg 3x a day (switched to liquid suspension) -> April 2023: 81mg 3x a day -> September 2023: bad generic, switched back to homemade liquid; too strong after bad generic, down to 70mg 3x a day, still bad. Adjusted slowly till at 60mg 3x a day, much better. Long hold till -> December 2023: 54mg, still feels too high after November Seroquel switch from brand name to generic, doc recommended 50mg which feels better -> January 2024: When Wellbutrin went down, Gabapentin started putting me to sleep, went down to 45mg, then 41mg to stay awake, so far so good -> February 2024: 36mg, still too high, 34mg -> March 2024: 31mg, STILL too high, 30mg

Supplements: Multivitamin w/magnesium, probiotics, digestive enzymes, anti-viral nitric oxide nose spray as needed

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  • Mentor

It's been surprisingly hard to stop drinking! I didn't even do it that often, but I miss the "normality" of having a beer with someone. Been a little jealous of my partner being able to crack open a beer after a long day to unwind too. I barely drank at home before all this, but not being able to has been making me want to more than usual, you know?

 

So! I put a bunch of sparkling waters in the fridge, then I can crack open a can and have the feeling of giving myself a treat, but it's pure hydration instead of a depressant like beer. Small thing, but it's been helping! 

 

I do feel a lot better not having alcohol mixing up my meds, but I'm having some feelings around it being yet one more loss of normality thanks to meds. Ah well, it's worth the benefits in the long run. Did not expect this to be a tough one, though! Perhaps I was relying on that occasional drinking more than I knew.

Pronouns: they/them/theirs 

Started on Prozac in early 2000s to treat cPTSD, been on various cocktails ever since.

2002-2004, 2017-2022: Buspar, tapered down to 0

2016-present: 100mg Seroquel for sleep -> May 2023: 90mg -> June 2023: 81mg -> September 2023: 72mg -> switched to brand name, much too strong, down to 60mg -> October 2023: 54mg -> November 2023: 50mg -> January 2024: 45mg -> April 2024: 40.5mg

2016-Present: 100mg Wellbutrin SR -> January 2023: 75mg IR (37.5mg 2x a day) -> February 2023 (33.75mg 2x a day) -> July 2023 (30.37mg 2x a day) -> August 2023: 27.33mg 2x a day 

2018-present: 25mg Pristiq

2015-present: 600mg Gabapentin (200mg 3x a day) -> December 2022: 300mg Gabapentin (100mg 3x a day) per GP's recommendation after side effects -> March 2023: 90mg 3x a day (switched to liquid suspension) -> April 2023: 81mg 3x a day -> September 2023: bad generic, switched back to homemade liquid; too strong after bad generic, down to 70mg 3x a day, still bad. Adjusted slowly till at 60mg 3x a day, much better. Long hold till -> December 2023: 54mg, still feels too high after November Seroquel switch from brand name to generic, doc recommended 50mg which feels better -> January 2024: When Wellbutrin went down, Gabapentin started putting me to sleep, went down to 45mg, then 41mg to stay awake, so far so good -> February 2024: 36mg, still too high, 34mg -> March 2024: 31mg, STILL too high, 30mg

Supplements: Multivitamin w/magnesium, probiotics, digestive enzymes, anti-viral nitric oxide nose spray as needed

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10 minutes ago, littlebird said:

It's been surprisingly hard to stop drinking! I didn't even do it that often, but I miss the "normality" of having a beer with someone. Been a little jealous of my partner being able to crack open a beer after a long day to unwind too. I barely drank at home before all this, but not being able to has been making me want to more than usual, you know?

 

So! I put a bunch of sparkling waters in the fridge, then I can crack open a can and have the feeling of giving myself a treat, but it's pure hydration instead of a depressant like beer. Small thing, but it's been helping! 

 

I do feel a lot better not having alcohol mixing up my meds, but I'm having some feelings around it being yet one more loss of normality thanks to meds. Ah well, it's worth the benefits in the long run. Did not expect this to be a tough one, though! Perhaps I was relying on that occasional drinking more than I knew.

I struggled with this too and also ended up on sparkling water. My partner bought me a sodastream to which I grumbled I wasn’t very excited about it. Then I very quickly became addicted to it and had to go back and let her know what an awesome gift it was and how much I appreciated it! It completely sucks not being able to have a drink. But it is not forever! I actually find now that most of the time I don’t want a drink. And some of the time when I DO want a drink it’s because there’s something I need to deal with and don’t want to. Promise it gets easier.

Age 16 (1995 - 2000) -Paroxetine
Age 21 (2000-2004) - Effexor 37.5mg
Age 24 (2004-2012) - Lexapro (70mg), Xanax minimum 2mg Xanax a day
About 32 (2012-2017?) - Every mood stabiliser under the sun (not at the same time) and minimum 2mg Xanax a day; occasional amisulpride 
About 35 (2017-current) - Lurasidone 80 mg, quickly titrated down to 40mg, Pristiq (50 mg), minimum of 2mg Xanax a day
About 41 (2020) Switched from Xanax to clonazepam and started tapering at 0.125 mg each reduction, tapered off Pristiq with a cross taper at the end, low dose of dextroamphetamine.
Age 42 (2021) Tried to taper off Lurasidone three times. Quick taper from 40mg to 0 mg over a couple of months the first time. Reinstated at 20mg. Tried twice more to taper from 20 mg to 0 mg dropping by 5 mg each reduction (about every 2 weeks).
Age 42-43 (April 2022) 20mg-18mg; May 18mg-16mg; June 16-14mg; September 14-12mg; September 12-14mg reinstated. February 2023 - hiccup with brand change, Back to Apotek brand and switch to homemade suspension.

Age 44 (August 2023 -restarted clonazepam taper). Start dose 0.375mg. 1/9/2023 - 0.365mg; 1/10/2023 - 0.324mg; 1/11/2023 - 0.264mg; 1/12/2023 - 0.25 mg (holding); 1/2/2024 - 0.232mg; 1/3/2024 - 0.221mg; 1/4/2024 - 0.205mg;

Health regimen: walks, hot/cold showers, ice baths, breathwork, mostly healthy diet, therapy...... Open to ideas! Supplements: Milk Kefir, Mag, Omega 3, CBD/THC.

 

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  • Mentor
10 minutes ago, Thorin said:

My partner bought me a sodastream to which I grumbled I wasn’t very excited about it. Then I very quickly became addicted to it and had to go back and let her know what an awesome gift it was and how much I appreciated it!

 

This was my partner with an air fryer. They grumble-grumbled but now use it more than I do. I was thinking about getting a sodastream, but there's a sweet old lady in my neighborhood who collects cans and it would greatly cut down on the size of the bag of cans I give her. I know it's better for the environment to sodastream, but she's so grateful! Can't cut into that until we move or she does.

 

12 minutes ago, Thorin said:

It completely sucks not being able to have a drink. But it is not forever! I actually find now that most of the time I don’t want a drink.

 

I've discovered sometimes I'm just thirsty! Getting in tune with body more, I had to be cut off from it and all the trauma that lives in there for so long that I'm still getting in the habit of talking to myself about what I need. I think I'm gonna have to be a bad littlebird on wedding day and have some champagne, it would feel too weird not to on that day. Shhh, don't read that, mods.

 

13 minutes ago, Thorin said:

some of the time when I DO want a drink it’s because there’s something I need to deal with and don’t want to.

 

That part!! I've been finding myself in this cycle (inspired by @Fifree's conversation with go faster demon):

- I want a drink

- Can't drink. I want to open work email and be productive

- It's late, work-life balance remember?

- Weed then! Anything! 

 

It's about then in the thought cycle I realize I'm running from something. OOF, this work ain't for the faint of heart.

Pronouns: they/them/theirs 

Started on Prozac in early 2000s to treat cPTSD, been on various cocktails ever since.

2002-2004, 2017-2022: Buspar, tapered down to 0

2016-present: 100mg Seroquel for sleep -> May 2023: 90mg -> June 2023: 81mg -> September 2023: 72mg -> switched to brand name, much too strong, down to 60mg -> October 2023: 54mg -> November 2023: 50mg -> January 2024: 45mg -> April 2024: 40.5mg

2016-Present: 100mg Wellbutrin SR -> January 2023: 75mg IR (37.5mg 2x a day) -> February 2023 (33.75mg 2x a day) -> July 2023 (30.37mg 2x a day) -> August 2023: 27.33mg 2x a day 

2018-present: 25mg Pristiq

2015-present: 600mg Gabapentin (200mg 3x a day) -> December 2022: 300mg Gabapentin (100mg 3x a day) per GP's recommendation after side effects -> March 2023: 90mg 3x a day (switched to liquid suspension) -> April 2023: 81mg 3x a day -> September 2023: bad generic, switched back to homemade liquid; too strong after bad generic, down to 70mg 3x a day, still bad. Adjusted slowly till at 60mg 3x a day, much better. Long hold till -> December 2023: 54mg, still feels too high after November Seroquel switch from brand name to generic, doc recommended 50mg which feels better -> January 2024: When Wellbutrin went down, Gabapentin started putting me to sleep, went down to 45mg, then 41mg to stay awake, so far so good -> February 2024: 36mg, still too high, 34mg -> March 2024: 31mg, STILL too high, 30mg

Supplements: Multivitamin w/magnesium, probiotics, digestive enzymes, anti-viral nitric oxide nose spray as needed

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  • Mentor
2 minutes ago, littlebird said:

- Can't drink. I want to open work email and be productive

- It's late, work-life balance remember?

 

Actually, this site has been a godsend for this. I've been trying to cut down on how much I work nights and weekends, which hasn't been easy. Some of the team is in Eastern Europe, so their mornings are gearing up when we're winding down for the night on the west coast. Easy to get pulled in at times, or if my partner is working and it overlaps with my work, or if we get an idea while chatting and feel like it's fun to run with it...

 

Anywho, talking to folks on here and processing in logs/journals has made me realize I was truly addicted to work for much of my life and used it to avoid thinking about trauma. It's clear in hindsight, but it's taking some real effort to repair that in the present.

 

So, when that lil "Ahh, I need to feel different" addiction thought cycle starts, I've been catching myself. When I open my work inbox, I'll look at the clock. Do I really want to be working close to midnight?

 

It's been helpful to click onto here instead, reading the wealth of information about this cocktail I'm on, and chatting with you truly wonderful folks. Making changes, little by little, day by day. One step, one night at a time.

 

Work can wait till Monday! It's Wind Down Time.

Pronouns: they/them/theirs 

Started on Prozac in early 2000s to treat cPTSD, been on various cocktails ever since.

2002-2004, 2017-2022: Buspar, tapered down to 0

2016-present: 100mg Seroquel for sleep -> May 2023: 90mg -> June 2023: 81mg -> September 2023: 72mg -> switched to brand name, much too strong, down to 60mg -> October 2023: 54mg -> November 2023: 50mg -> January 2024: 45mg -> April 2024: 40.5mg

2016-Present: 100mg Wellbutrin SR -> January 2023: 75mg IR (37.5mg 2x a day) -> February 2023 (33.75mg 2x a day) -> July 2023 (30.37mg 2x a day) -> August 2023: 27.33mg 2x a day 

2018-present: 25mg Pristiq

2015-present: 600mg Gabapentin (200mg 3x a day) -> December 2022: 300mg Gabapentin (100mg 3x a day) per GP's recommendation after side effects -> March 2023: 90mg 3x a day (switched to liquid suspension) -> April 2023: 81mg 3x a day -> September 2023: bad generic, switched back to homemade liquid; too strong after bad generic, down to 70mg 3x a day, still bad. Adjusted slowly till at 60mg 3x a day, much better. Long hold till -> December 2023: 54mg, still feels too high after November Seroquel switch from brand name to generic, doc recommended 50mg which feels better -> January 2024: When Wellbutrin went down, Gabapentin started putting me to sleep, went down to 45mg, then 41mg to stay awake, so far so good -> February 2024: 36mg, still too high, 34mg -> March 2024: 31mg, STILL too high, 30mg

Supplements: Multivitamin w/magnesium, probiotics, digestive enzymes, anti-viral nitric oxide nose spray as needed

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27 minutes ago, littlebird said:

This was my partner with an air fryer. They grumble-grumbled but now use it more than I do.

Hmmm is it funny or annoying for the other partner when this happens?

 

28 minutes ago, littlebird said:

I know it's better for the environment to sodastream, but she's so grateful! C

Ah altruism. Very nice!

 

28 minutes ago, littlebird said:

had to be cut off from it and all the trauma that lives in there for so long that I'm still getting in the habit of talking to myself abo

IMm STILL getting used to this. This journey sucks and I’m well and truly bored of it. Wish I could just take a substance and feel good. But that doesn’t work! I’ve tried it (for 28 years) and now here I am.

 

30 minutes ago, littlebird said:

think I'm gonna have to be a bad littlebird on wedding day and have some champagne, it would feel too weird not to on that day

I definitely would if I was getting married! Some people have continued to drink throughout their taper. I find it messes with me so I don’t. 

 

31 minutes ago, littlebird said:

That part!! I've been finding myself in this cycle (inspired by @Fifree's conversation with go faster demon):

- I want a drink

- Can't drink. I want to open work email and be productive

- It's late, work-life balance remember?

- Weed then! Anything! 

I’ve always been an ‘anything’, just give me something rather than what I don’t want to face man. Not anymore. I’m all for a little escapism but I’m going to face this stuff if it kills me! (Hope it doesn’t 😉. Hasn’t so far)

Age 16 (1995 - 2000) -Paroxetine
Age 21 (2000-2004) - Effexor 37.5mg
Age 24 (2004-2012) - Lexapro (70mg), Xanax minimum 2mg Xanax a day
About 32 (2012-2017?) - Every mood stabiliser under the sun (not at the same time) and minimum 2mg Xanax a day; occasional amisulpride 
About 35 (2017-current) - Lurasidone 80 mg, quickly titrated down to 40mg, Pristiq (50 mg), minimum of 2mg Xanax a day
About 41 (2020) Switched from Xanax to clonazepam and started tapering at 0.125 mg each reduction, tapered off Pristiq with a cross taper at the end, low dose of dextroamphetamine.
Age 42 (2021) Tried to taper off Lurasidone three times. Quick taper from 40mg to 0 mg over a couple of months the first time. Reinstated at 20mg. Tried twice more to taper from 20 mg to 0 mg dropping by 5 mg each reduction (about every 2 weeks).
Age 42-43 (April 2022) 20mg-18mg; May 18mg-16mg; June 16-14mg; September 14-12mg; September 12-14mg reinstated. February 2023 - hiccup with brand change, Back to Apotek brand and switch to homemade suspension.

Age 44 (August 2023 -restarted clonazepam taper). Start dose 0.375mg. 1/9/2023 - 0.365mg; 1/10/2023 - 0.324mg; 1/11/2023 - 0.264mg; 1/12/2023 - 0.25 mg (holding); 1/2/2024 - 0.232mg; 1/3/2024 - 0.221mg; 1/4/2024 - 0.205mg;

Health regimen: walks, hot/cold showers, ice baths, breathwork, mostly healthy diet, therapy...... Open to ideas! Supplements: Milk Kefir, Mag, Omega 3, CBD/THC.

 

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  • Moderator
On 2/24/2023 at 6:05 PM, littlebird said:

Called Kaiser, the doctor cancelled the appointment 15 minutes before it was supposed to begin. That message didn't come through to me and I got an automatic link to the video call instead.

 

I waited over 7 weeks for that appointment! Trying to see when I can get in with someone else, looks like it might be another long wait. 

 

Kaiser is truly the worst healthcare I've experienced, I've had much better treatment at free clinics. If only there was a free clinic for meds! Having a little frustrated cry. 

 

I am so sorry that you had to go through this, littlebird - so unprofessional on their side! 

 

Pre- October 2022: Wellbutrin, Escitalopram, CitalopramSertraline, Adderall IR, Vyvanse, Propranolol, Buspar, Ativan, and Latuda

Oct 13, 2022 - Oct 24, 2022 and Oct 31, 2022 - Present: Zyprexa (2.5 mg). Jan 14, 2023 -> Began transition to liquid suspension. Jan 29, 2023 = 2.375mg -> Feb 12, 2023 = 2.25mg -> Feb 27, 2023 = 2.14mg -> Mar 12, 2023 = 2.025mg -> Mar 27, 2023 = 1.93mg -> Apr 10, 2023 = 1.82mg -> Apr 23, 2023 = 1.74mg -> May 7, 2023 = 1.64mg -> May 21, 2023 = 1.56mg -> June 4, 2023 = 1.48mg -> June 19, 2023 = 1.4mg -> July 2, 2023 = 1.33mg -> July 16, 2023 = 1.26mg -> July 31, 2023 = 1.2mg -> Aug 13, 2023 = 1.14mg -> Aug 27, 2023 = 1.08mg -> Sep 13, 2023 = 1.02mg -> Jan 22, 2024 = 0.97mg -> Feb 4, 2024 = 0.92mg -> Feb 19, 2024 = 0.87mg -> Mar 3, 2024 = 0.83mg -> Mar 17, 2024 = 0.78mg -> Mar 31, 2024 = 0.74mg -> Apr 14, 2024 = 0.7mg -> Apr 28, 2024 = 0.66mg -> May 12, 2024 = 0.63mg

Oct 14, 2022 - Present: Prozac (40mg) upped from 20mg on Nov 1, 2022.

Oct 31, 2022 - Present: Gabapentin (300mg 3x day) -> May 3, 2023 = 300mg 2x day -> Oct 1, 2023 = 570mg -> Oct 15, 2023 = 540mg -> Oct 29, 2023 = 510mg -> Nov 13, 2023 = 484mg -> Nov 27, 2023 = 460mg -> Dec 9, 2023 = 436mg -> Dec 24, 2023 = 414mg -> Jan 7, 2024 = 400mg

 

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  • Mentor
11 hours ago, Thorin said:
12 hours ago, littlebird said:

This was my partner with an air fryer. They grumble-grumbled but now use it more than I do.

Hmmm is it funny or annoying for the other partner when this happens?

 

Depends on a lot of factors, I guess!! 😂  I've definitely had my moments of, "Don't know about that one," then coming around and saying, "You were right, that's cool," so it goes both ways. I was that way with the InstantPot, super skeptic who came around.

 

11 hours ago, Thorin said:

I’ve always been an ‘anything’, just give me something rather than what I don’t want to face man. Not anymore. I’m all for a little escapism but I’m going to face this stuff if it kills me! (Hope it doesn’t 😉. Hasn’t so far)

 

Yup!! With developmental trauma, how could we not? It's not like we had coping skills as good examples, it was a "anything that helps me survive this" learning experience.

 

Now that we've got utility belts full of tools and tricks, we're ready to face this **** without numbing it out. We're brave as ****, yo! If Valhalla is where warriors go, I'll have a drink there with all y'all on the other side. We better get our battlesongs perfected, love that idea @j1290

Pronouns: they/them/theirs 

Started on Prozac in early 2000s to treat cPTSD, been on various cocktails ever since.

2002-2004, 2017-2022: Buspar, tapered down to 0

2016-present: 100mg Seroquel for sleep -> May 2023: 90mg -> June 2023: 81mg -> September 2023: 72mg -> switched to brand name, much too strong, down to 60mg -> October 2023: 54mg -> November 2023: 50mg -> January 2024: 45mg -> April 2024: 40.5mg

2016-Present: 100mg Wellbutrin SR -> January 2023: 75mg IR (37.5mg 2x a day) -> February 2023 (33.75mg 2x a day) -> July 2023 (30.37mg 2x a day) -> August 2023: 27.33mg 2x a day 

2018-present: 25mg Pristiq

2015-present: 600mg Gabapentin (200mg 3x a day) -> December 2022: 300mg Gabapentin (100mg 3x a day) per GP's recommendation after side effects -> March 2023: 90mg 3x a day (switched to liquid suspension) -> April 2023: 81mg 3x a day -> September 2023: bad generic, switched back to homemade liquid; too strong after bad generic, down to 70mg 3x a day, still bad. Adjusted slowly till at 60mg 3x a day, much better. Long hold till -> December 2023: 54mg, still feels too high after November Seroquel switch from brand name to generic, doc recommended 50mg which feels better -> January 2024: When Wellbutrin went down, Gabapentin started putting me to sleep, went down to 45mg, then 41mg to stay awake, so far so good -> February 2024: 36mg, still too high, 34mg -> March 2024: 31mg, STILL too high, 30mg

Supplements: Multivitamin w/magnesium, probiotics, digestive enzymes, anti-viral nitric oxide nose spray as needed

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  • Mentor
11 hours ago, FireflyFyte said:

I am so sorry that you had to go through this, littlebird - so unprofessional on their side! 

 

Thank you! Yeah, unprofessional and also par for the course. I have years' worth of stories of how bad this company is, but there's no need to bring down the mood! It is better care for emergency situations than other ones, but one of the worst plans for mental health. Maybe one day there'll be a class-action lawsuit against them I can hop on! They're liable for sure.

 

Appreciate the support! Hope you're holding up well.

Pronouns: they/them/theirs 

Started on Prozac in early 2000s to treat cPTSD, been on various cocktails ever since.

2002-2004, 2017-2022: Buspar, tapered down to 0

2016-present: 100mg Seroquel for sleep -> May 2023: 90mg -> June 2023: 81mg -> September 2023: 72mg -> switched to brand name, much too strong, down to 60mg -> October 2023: 54mg -> November 2023: 50mg -> January 2024: 45mg -> April 2024: 40.5mg

2016-Present: 100mg Wellbutrin SR -> January 2023: 75mg IR (37.5mg 2x a day) -> February 2023 (33.75mg 2x a day) -> July 2023 (30.37mg 2x a day) -> August 2023: 27.33mg 2x a day 

2018-present: 25mg Pristiq

2015-present: 600mg Gabapentin (200mg 3x a day) -> December 2022: 300mg Gabapentin (100mg 3x a day) per GP's recommendation after side effects -> March 2023: 90mg 3x a day (switched to liquid suspension) -> April 2023: 81mg 3x a day -> September 2023: bad generic, switched back to homemade liquid; too strong after bad generic, down to 70mg 3x a day, still bad. Adjusted slowly till at 60mg 3x a day, much better. Long hold till -> December 2023: 54mg, still feels too high after November Seroquel switch from brand name to generic, doc recommended 50mg which feels better -> January 2024: When Wellbutrin went down, Gabapentin started putting me to sleep, went down to 45mg, then 41mg to stay awake, so far so good -> February 2024: 36mg, still too high, 34mg -> March 2024: 31mg, STILL too high, 30mg

Supplements: Multivitamin w/magnesium, probiotics, digestive enzymes, anti-viral nitric oxide nose spray as needed

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